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Title: Just-in-Time Design: In Situ Methods for Capturing and Articulating Adolescents’ Illness Experiences
During phases of treatment and between visits to the doctor’s office, adolescent patients with complex chronic illnesses must recognize and communicate about illness-related experiences with a variety of caregivers. However, significant gaps exist in our understanding of how to design appropriate techniques for eliciting day-to-day, illness- related observations from these patients. To address this gap, we draw on qualitative research on the needs of adolescents with complex chronic illnesses to propose a new, in situ approach to eliciting participatory design input, called “Just-in-Time Design.” Our approach draws inspiration from future breaching experiments and just- in-time intervention research, to both elicit adolescents’ momentary experiences and couple these with participatory design feedback. In this position paper we discuss our work-in-progress including how we are currently applying Just-in-Time Design to design new symptom-tracking tools for adolescents with cancer and chronic blood disorders  more » « less
Award ID(s):
1652302
PAR ID:
10055129
Author(s) / Creator(s):
; ;
Date Published:
Journal Name:
Proc. 7th WISH 2017 at the American Medical Informatics Association (AMIA) Annual Symposium
Format(s):
Medium: X
Sponsoring Org:
National Science Foundation
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