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1. Distress and self-care among chaplains working in palliative care

   https://doi.org/10.1017/S1478951518001062  

   White, Kelsey B.; Murphy, Patricia E.; Jeuland, Jane; Fitchett, George (October 2019, Palliative and Supportive Care)

   Abstract Background The prevalence of burnout and distress among palliative care professionals has received much attention since research suggests it negatively impacts the quality of care. Although limited, research suggests low levels of burnout or distress among healthcare chaplains; however, there has been no research among chaplains working in specific clinical contexts, including palliative care. Objective This study explored the distress, self-care, and debriefing practices of chaplains working in palliative care. Method Exploratory, cross-sectional survey of professional chaplains. Electronic surveys were sent to members of four professional chaplaincy organizations between February and April 2015. Primary measures of interest included Professional Distress, Distress from Theodicy, Informal Self-care, Formal Self-care, and debriefing practices. Result More than 60% of chaplains working in palliative care reported feeling worn out in the past 3 months because of their work as a helper; at least 33% practice Informal Self-care weekly. Bivariate analysis suggested significant associations between Informal Self-care and both Professional Distress and Distress from Theodicy. Multivariate analysis also identified that distress decreased as Informal and Formal Self-care increased. Significance of results Chaplains working in palliative care appear moderately distressed, possibly more so than chaplains working in other clinical areas. These chaplains also use debriefing, with non-chaplain palliative colleagues, to process clinical experiences. Further research is needed about the role of religious or spiritual beliefs and practices in protecting against stress associated with care for people at the end of life. 

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2. The Context of Care: Abstraction Hierarchy Modeling of Therapeutic Foster Care Programs

   https://doi.org/10.1177/15553434231211060  

   Wurst, Connor; Chen, Huei-Yen Winnie; Bisantz, Ann M.; Hall, Seventy F.; Maggiulli, Laura; Joseph, Kenneth; Sage, Melanie (March 2024, Journal of Cognitive Engineering and Decision Making)

   Therapeutic foster care agencies provide temporary placements and a range of services to at-risk youth to help ensure their safety, permanency, and wellbeing. The practitioners that plan such care operate under heavy caseloads, limited resources, and high stakes. There is significant interest in supporting these practitioners with various technological interventions, but their work and the context around it is still poorly understood. This study aims to better understand the current assessment and treatment planning work in therapeutic foster care. We used the abstraction hierarchy modeling approach to outline the purposes, values, constraints, processes, and tools that define the workplace ecology encountered by care coordinators and clinicians from therapeutic foster care programs at Hillside, a collaborating human service organization. The resulting abstraction hierarchy was closely examined to identify areas for interventions and design implications. 

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3. Care Layering: Complicating Design Patterns

   https://doi.org/10.1145/3643834.3660740  

   Kaneko, Maya A; Lustig, Caitlin; Rosner, Daniela; Desjardins, Audrey (July 2024, ACM)
4. Bridging Culture and Care: A Mobile App for Diabetes Self-Care Honoring Native American Cultural Practices

   https://doi.org/10.25046/aj090110  

   Hasan, Wordh Ul; Zaman, Kimia Tuz; Alian, Shadi; Liang, Tianyi; Pandey, Vikram; Kong, Jun; Tao, Cui; Li, Juan (January 2024, Advances in Science, Technology and Engineering Systems Journal)
5. The Future of Care Work: Towards a Radical Politics of Care in CSCW Research and Practice

   https://doi.org/10.1145/3462204.3481734  

   Karusala, Naveena; Ismail, Azra; Bhat, Karthik S; Gautam, Aakash; Pendse, Sachin R; Kumar, Neha; Anderson, Richard; Balaam, Madeline; Bardzell, Shaowen; Bidwell, Nicola J; et al (October 2021, CSCW '21: Companion Publication of the 2021 Conference on Computer Supported Cooperative Work and Social Computing)