The PanNET Working Group of the 16th International Multiple Endocrine Neoplasia Workshop (MEN2019) convened in Houston, TX, USA, 27–29 March 2019 to discuss key unmet clinical needs related to PanNET in the context of MEN1, with a special focus on non-functioning (nf)-PanNETs. The participants represented a broad range of medical scientists as well as representatives from patient organizations, pharmaceutical industry and research societies. In a case-based approach, participants addressed early detection, surveillance, prognostic factors and management of localized and advanced disease. For each topic, after a review of current evidence, key unmet clinical needs and future research directives to make meaningful progress for MEN1 patients with nf-PanNETs were identified. International multi-institutional collaboration is needed for adequately sized studies and validation of findings in independent datasets. Collaboration between basic, translational and clinical scientists is paramount to establishing a translational science approach. In addition, bringing clinicians, scientists and patients together improves the prioritization of research goals, assures a patient-centered approach and maximizes patient involvement. It was concluded that collaboration, research infrastructure, methodologic and reporting rigor are essential to any translational science effort. The highest priority for nf-PanNETs in MEN1 syndrome are (1) the development of a data and biospecimen collection architecture that is uniform across all MEN1 centers, (2) unified strategies for diagnosis and follow-up of incident and prevalent nf-PanNETs, (3) non-invasive detection of individual nf-PanNETs that have an increased risk of metastasis, (4) chemoprevention clinical trials driven by basic research studies and (5) therapeutic targets for advanced disease based on biologically plausible mechanisms.
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US-Serbia and West Balkan Data Science Workshop
The project mission was to organize a workshop aimed to explore how the US data science community can cooperate with and benefit from collaborations with partners in Serbia and the West Balkan region. The scope included fundamental data science methods and high-impact applications related to big data processing, security and privacy in critical infrastructures, biomedical informatics, and computational archeology. The proposed workshop facilitated closing the gap between data science research in the US and Serbia and the region and brought together data scientists with researchers from disciplines that until recently had little exposure to data science methods, potentially enabling collaborative breakthroughs in those scientific fields. A large fraction of participants from both sides were early career researchers including advanced level graduate students, postdoctoral research associates, and assistant/associate professors within 10 years of obtaining their Ph.D. The participants included a large fraction of female and minority scientists. The workshop objective was achieved by including the following inter-related objectives: (1) Establishing new multidisciplinary international collaborations between data science, mathematics, and sciences that generate big data and require advanced methods; (2) Reinforcing collaboration mechanisms between the NSF and Serbia’s Ministry of Education, Science and Technological Development and organize joint research projects; and (3) Widening the impact of the workshop, by involving researchers and stakeholders from the West Balkan region. The workshop consisted of four tracks, each co-chaired by 3 investigators from the US, Serbia and another West Balkan country. Tangible outcomes from the workshop include a report describing workshop activities for each of four tracks and a proposal recommending research collaboration areas of interest for all parties and determining collaboration mechanisms and programs to facilitate collaboration.
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- Award ID(s):
- 1818661
- NSF-PAR ID:
- 10162260
- Date Published:
- Journal Name:
- NSF Workshop Reports
- ISSN:
- 9999-999X
- Format(s):
- Medium: X
- Sponsoring Org:
- National Science Foundation
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Abstract The decision to establish a network of researchers centers on identifying shared research goals. Ecologically specific regions, such as the USA’s National Ecological Observatory Network’s (NEON’s) eco-climatic domains, are ideal locations by which to assemble researchers with a diverse range of expertise but focused on the same set of ecological challenges. The recently established Great Lakes User Group (GLUG) is NEON’s first domain specific ensemble of researchers, whose goal is to address scientific and technical issues specific to the Great Lakes Domain 5 (D05) by using NEON data to enable advancement of ecosystem science. Here, we report on GLUG’s kick off workshop, which comprised lightning talks, keynote presentations, breakout brainstorming sessions and field site visits. Together, these activities created an environment to foster and strengthen GLUG and NEON user engagement. The tangible outcomes of the workshop exceeded initial expectations and include plans for (i) two journal articles (in addition to this one), (ii) two potential funding proposals, (iii) an assignable assets request and (iv) development of classroom activities using NEON datasets. The success of this 2.5-day event was due to a combination of factors, including establishment of clear objectives, adopting engaging activities and providing opportunities for active participation and inclusive collaboration with diverse participants. Given the success of this approach we encourage others, wanting to organize similar groups of researchers, to adopt the workshop framework presented here which will strengthen existing collaborations and foster new ones, together with raising greater awareness and promotion of use of NEON datasets. Establishing domain specific user groups will help bridge the scale gap between site level data collection and addressing regional and larger ecological challenges.
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Kirgiz, Mehmet Serkan (Ed.)Interdisciplinary research is the synergistic combination of two or more disciplines to achieve one research objective. Current research highlights the importance of interdisciplinary research in science education, particularly between educational experts within a particular science discipline (discipline-based education researchers) and those who study human learning in a more general sense (learning scientists). However, this type of interdisciplinary research is not common and little empirical evidence exists that identifies barriers and possible solutions. We hosted a pre-conference workshop for Discipline-Based Educational Researchers and Learning Scientists designed to support interdisciplinary collaborations. We collected evidence during our workshop regarding barriers to interdisciplinary collaborations in science education, perceptions of perceived cohesion in participants’ home university departments and professional communities, and the impact of our workshop on fostering new connections. Based on participants’ responses, we identified three categories of barriers, Disciplinary Differences , Professional Integration , and Collaborative Practice . Using a post-conference survey, we found an inverse pattern in perceived cohesion to home departments compared to self-identified professional communities. Additionally, we found that after the workshop participants reported increased connections across disciplines. Our results provide empirical evidence regarding challenges to interdisciplinary research in science education and suggest that small professional development workshops have the potential for facilitating durable interdisciplinary networks where participants feel a sense of belonging not always available in their home departments.more » « less
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