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1. Conducting Risky Research with Teens: Co-designing for the Ethical Treatment and Protection of Adolescents

   https://doi.org/10.1145/3432930  

   Badillo-Urquiola, Karla; Shea, Zachary; Agha, Zainab; Lediaeva, Irina; Wisniewski, Pamela (January 2021, Proceedings of the ACM on Human-Computer Interaction)

   null (Ed.)

   The methods in which we study the online experiences of adolescents should be evidence-based and informed by youth. This is especially true when studying sensitive topics, such as the online risk behaviors of minors. We directly engaged 20 adolescents (ages 12-18) in the co-design of two different research methodologies (i.e., diary studies and analyzing social media trace data) for conducting adolescent online safety research. We also interviewed 13 of their parents to understand their perspectives. Overall, teens wanted to share their personal experiences and benefit society, while parents wanted researchers to tackle a topic that they felt was a prevalent problem for teens. Yet, they both had significant concerns regarding data privacy of the sensitive disclosures made by teens during such studies. Teens' feared getting in trouble. Participants emphasized the importance of developing a trusting relationship with the researcher to overcome these concerns. Participants also saw the potential for using the research study as a tool for risk-reporting and mitigation, where researchers could act as liaisons between the teens and other parties (e.g., counselors, law enforcement, parents) to share pertinent risk details and facilitate resources or even help teens directly by giving them strategies for mitigating online risks they encountered during the study. Our research delves into important ethical considerations for conducting risk-focused research with adolescents and uncovers the critical need for designing risk-based research for youth protection. We provide researchers with heuristic guidelines for conducting ethical research with vulnerable populations (i.e., adolescents) and keeping participants safe while doing so. 

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2. Privacy Challenges for Adolescents as a Vulnerable Population

   Razi, Afsaneh; Agha, Zainab; Chatlani, Neeraj; Wisniewski, Pamela (April 2020, Networked Privacy Workshop of the 2020 CHI Conference on Human Factors in Computing Systems)

   Future online safety technologies should consider the privacy needs of adolescents (ages 13-17) and support their ability to self-regulate their online behaviors and navigate online risks. To do this, adolescent online safety researchers and practitioners must shift towards solutions that are more teen-centric by designing privacy-preserving online safety solutions for teens. In this paper, we discuss privacy challenges we have encountered in conducting adolescent online safety research. We discuss privacy concerns of teens in regard to sharing their private social media data with researchers and potentially taking part in a user study where they share some of this information with their parents. Our research emphasizes a need for more privacy-preserving interventions for teens. 

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3. From Parental Control to Joint Family Oversight: Can Parents and Teens Manage Mobile Online Safety and Privacy as Equals?

   https://doi.org/10.1145/3512904  

   Akter, Mamtaj; Godfrey, Amy J.; Kropczynski, Jess; Lipford, Heather R.; Wisniewski, Pamela J. (March 2022, Proceedings of the ACM on Human-Computer Interaction)

   Our research aims to highlight and alleviate the complex tensions around online safety, privacy, and smartphone usage in families so that parents and teens can work together to better manage mobile privacy and security-related risks. We developed a mobile application ("app") for Community Oversight of Privacy and Security ("CO-oPS") and had parents and teens assess whether it would be applicable for use with their families. CO-oPS is an Android app that allows a group of users to co-monitor the apps installed on one another's devices and the privacy permissions granted to those apps. We conducted a study with 19 parent-teen (ages 13-17) pairs to understand how they currently managed mobile safety and app privacy within their family and then had them install, use, and evaluate the CO-oPS app. We found that both parents and teens gave little consideration to online safety and privacy before installing new apps or granting privacy permissions. When using CO-oPS, participants liked how the app increased transparency into one another's devices in a way that facilitated communication, but were less inclined to use features for in-app messaging or to hide apps from one another. Key themes related to power imbalances between parents and teens surfaced that made co-management challenging. Parents were more open to collaborative oversight than teens, who felt that it was not their place to monitor their parents, even though both often believed parents lacked the technological expertise to monitor themselves. Our study sheds light on why collaborative practices for managing online safety and privacy within families may be beneficial but also quite difficult to implement in practice. We provide recommendations for overcoming these challenges based on the insights gained from our study. 

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4. Visual ODLs: Co-Designing Patient-Generated Observations of Daily Living to Support Data-Driven Conversations in Pediatric Care.

   Hong, Matthew K.; Lakshmi, Udaya; Olson, Thomas O; Wilcox, Lauren (April 2018, ACM conference on human factors in computing systems)

   Teens with complex chronic illnesses have difficulty understanding and articulating symptoms such as pain and emotional distress. Yet, symptom communication plays a central role in clinical care and illness management. To understand how design can help overcome these challenges, we created a visual library of 72 sketched illustrations, informed by the Observations of Daily Living framework along with insights from 11 clinician interviews. We utilized our library with storyboarding techniques, free-form sketching, and interviews, in co-design sessions with 13 pairs of chronically-ill teens and their parents. We found that teens depicted symptoms as being interwoven with narratives of personal and social identity. Teens and parents were enthusiastic about collaboratively-generated, interactive storyboards as a tracking and communication mechanism, and suggested three ways in which they could aid in communication and coordination with informal and formal caregivers. In this paper, we detail these findings, to guide the design of tools for symptom-tracking and incorporation of patient-generated data into pediatric care. 

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5. "Strike at the Root": Co-designing Real-Time Social Media Interventions for Adolescent Online Risk Prevention

   https://doi.org/10.1145/3579625  

   Agha, Zainab; Badillo-Urquiola, Karla; Wisniewski, Pamela J. (April 2023, Proceedings of the ACM on Human-Computer Interaction)

   Adolescent online safety researchers have emphasized the importance of moving beyond restrictive and privacy invasive approaches to online safety, towards resilience-based approaches for empowering teens to deal with online risks independently. Unfortunately, many of the existing online safety interventions are focused on parental mediation and not contextualized to teens' personal experiences online; thus, they do not effectively cater to the unique needs of teens. To better understand how we might design online safety interventions that help teens deal with online risks, as well as when and how to intervene, we must include teens as partners in the design process and equip them with the skills needed to contribute equally to the design process. As such, we conducted User Experience (UX) bootcamps with 21 teens (ages 13-17) to first teach them important UX design skills using industry standard tools, so they could create storyboards for unsafe online interactions commonly experienced by teens and high-fidelity, interactive prototypes for dealing with these situations. Based on their storyboards, teens often encountered information breaches and sexual risks with strangers, as well as cyberbullying from acquaintances or friends. While teens often blocked or reported strangers, they struggled with responding to risks from friends or acquaintances, seeking advice from others on the best action to take. Importantly, teens did not find any of the existing ways for responding to these risks to be effective in keeping them safe. When asked to create their own design-based interventions, teens frequently envisioned nudges that occurred in real-time. Interestingly, teens more often designed for risk prevention (rather than risk coping) by focusing on nudging the risk perpetrator (rather than the victim) to rethink their actions, block harmful actions from occurring, or penalizing perpetrators for inappropriate behavior to prevent it from happening again in the future. Teens also designed personalized sensitivity filters to provide teens the ability to manage content they wanted to see online. Some teens also designed personalized nudges, so that teens could receive intelligent, guided advice from the platform that would help them know how to handle online risks themselves without intervention from their parents. Our findings highlight how teens want to address online risks at the root by putting the onus of risk prevention on those who perpetrate them - rather than on the victim. Our work is the first to leverage co-design with teens to develop novel online safety interventions that advocate for a paradigm shift from youth risk protection to promoting good digital citizenship. 

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