Title: Examining Mobility Among People Living with HIV in Rural Areas
The rise of ridesharing platforms has transformed traditional transportation, making it more accessible for getting to work and accessing grocery stores and healthcare providers, which are essential to physical and mental well-being. However, such technologies are not available everywhere. Additionally, there is a scarcity of HCI work that investigates how vulnerable populations such as rural-dwelling people with HIV face and overcome transportation barriers. To extend past research, we conducted 31 surveys and 18 interviews with people living with HIV (22 surveys, 14 interviews) and their case coordinators (9 surveys, 4 interviews) in rural areas. Contrary to past research, we found that the use of alternative vehicles, extensive support networks, and nonprofit health organizations facilitated transportation. However, distance, the lack of trust and infrastructure, stigma, and other cultural underpinnings made popular forms of urban transportation unappealing. We contextualize our findings with prior research and contribute implications for future research and design. more »« less
Theisz, Alec A; Furness, Megan; Maestre, Juan Fernando; Kameswaran, Vashnav; Dillahunt, Tawanna R; Veinot, Tiffany; Shih, Patrick C
(, American Medical Informatics Association Annual Symposium Workshop on Interactive Systems in Health Care)
null
(Ed.)
Transportation has evolved throughout the past several years through developments in HCI and sociotechnical systems. However, there has been a lack of studies examining transportation in rural areas for vulnerable populations. Our study focuses on the transportation facilitators and barriers faced by people living with HIV in rural areas. We were informed through 31 surveys and 18 interviews with people living with HIV in rural areas and their case coordinators. We highlight the importance of utilizing a patchwork of transportation methods and having social networks to support transportation needs. Emerging, popular forms of urban transportation do not translate well due to differences in trust, infrastructure, rural culture, and stigma.
Herkshan, Laticia J; Hart‐Fredeluces, Georgia M; Redd, Elizabeth A; Tso, TJ; Burnham, Morey
(, Rural Sociology)
Abstract Research partnerships between Tribal Nations and rural colleges and universities can support rural development and strengthen Tribal Nation building through reclamation of economic, political, cultural, and social affairs. However, Tribal Nation–University relationships have received little attention in rural sociology. While scholars identify best practices for research engagement in light of colonial harms, the ideal visions that Tribally and university‐affiliated people have for research partnerships and the barriers to achieving those ideals are poorly understood. Without identifying these visions and barriers, we risk making wrong assumptions about each party's needs and cannot implement appropriate policies. Semi‐structured interviews with Tribally‐affiliated (n = 20) and university‐affiliated (n = 20) people in rural southeastern Idaho suggest, contrary to literature on best practices for collaborative research, that participants in both groups viewed what we term “Tribally‐responsive research engagement” as ideal, though few projects met this goal. Tribally‐responsive research directly addressed Tribal priorities but did not necessarily involve close collaboration. The University's failure to acknowledge past or colonial harms, university‐affiliated researchers' historicization of those harms, and negative Native student experiences reinforced distrust, limiting desired research engagement. In sum, Tribally‐responsive research engagement could strengthen Native Nation building, but requires universities to acknowledge harms, create more welcoming campus environments, and prioritize Tribal benefits in research.
Maestre, Juan F.; Zdziarska, Patrycja; Min, Aehong; Baglione, Anna N.; Chung, Chia-Fang; Shih, Patrick C.
(, Proceedings of the ACM on Human-Computer Interaction)
null
(Ed.)
People living with HIV experience a high level of stigma in our society. Public HIV-related stigma often leads to anxiety and depression and hinders access to social support and proper medical care. Technologies for HIV, however, have been mainly designed for treatment management and medication adherence rather than for helping people cope with public HIV-related stigma specifically. Drawing on empirical data obtained from semi-structured interviews and design activities with eight social workers and 29 people living with HIV, we unpack the ways in which needs for privacy and trust, intimacy, and social support create tensions around key coping strategies. Reflecting on these tensions, we present design implications and opportunities to empower people living with HIV to cope with public HIV-related stigma at the individual level.
Accomplishing the goals outlined in “Ending the HIV (Human Immunodeficiency Virus) Epidemic: A Plan for America Initiative” will require properly estimating and increasing access to HIV testing, treatment, and prevention services. In this research, a computational spatial method for estimating access was applied to measure distance to services from all points of a city or state while considering the size of the population in need for services as well as both driving and public transportation. Specifically, this study employed the enhanced two-step floating catchment area (E2SFCA) method to measure spatial accessibility to HIV testing, treatment (i.e., Ryan White HIV/AIDS program), and prevention (i.e., Pre-Exposure Prophylaxis [PrEP]) services. The method considered the spatial location of MSM (Men Who have Sex with Men), PLWH (People Living with HIV), and the general adult population 15–64 depending on what HIV services the U.S. Centers for Disease Control (CDC) recommends for each group. The study delineated service- and population-specific accessibility maps, demonstrating the method’s utility by analyzing data corresponding to the city of Chicago and the state of Illinois. Findings indicated health disparities in the south and the northwest of Chicago and particular areas in Illinois, as well as unique health disparities for public transportation compared to driving. The methodology details and computer code are shared for use in research and public policy.
Amenity migration in the Intermountain West is a rapidly evolving process that has greatly impacted wellbeing in many rural communities over the past several decades. While the impacts of amenity migration have been discussed through both individual community case studies and cross‐community comparative analysis, there is an ongoing need for research that continues to build upon our understanding of amenity migration's effects on individual and community wellbeing. Remote and hybrid work opportunities, expanded during the COVID‐19 pandemic, have allowed for an increasing number of people to live part or full‐time in highly desirable rural locations, particularly those proximate to larger urban areas. In this paper, we discuss the historical and current trends of amenity migration in Kittitas County, proximate to Seattle, Washington, on the eastern slope of the Cascade Mountains. Drawing upon perspectives shared in 80 interviews with key informants and community members about community wellbeing in three towns, we discuss the implications of amenity migration for the perceived quality of life of both longer‐term residents and newer community members. Additionally, the setting and scope of this research allows for comparison between high‐amenity rural communities with larger recreation economies, and adjacent less—amenity‐based rural communities. Findings indicate that amenity migration continues to evolve and impact community wellbeing, primarily via community cultural changes and socioeconomic and housing inequality. However, there are nuanced geographical and longitudinal differences in the impacts of amenity migration. Additionally, participants perceived an increase in amenity migration patterns and impacts in the years following the COVID‐19 pandemic. To conclude, we discuss ongoing and potential initiatives that may help support community wellbeing, as well as possibilities for further improvements in policy and planning to equitably increase the quality of life for all residents.
F. Maestre, Juan, Dillahunt, Tawanna, Andrew Theisz, Alec, Furness, Megan, Kameswaran, Vaishnav, Veinot, Tiffany, and C. Shih, Patrick. Examining Mobility Among People Living with HIV in Rural Areas. Retrieved from https://par.nsf.gov/biblio/10300970. Proceedings of the 2021 CHI Conference on Human Factors in Computing Systems . Web. doi:10.1145/3411764.3445086.
F. Maestre, Juan, Dillahunt, Tawanna, Andrew Theisz, Alec, Furness, Megan, Kameswaran, Vaishnav, Veinot, Tiffany, & C. Shih, Patrick. Examining Mobility Among People Living with HIV in Rural Areas. Proceedings of the 2021 CHI Conference on Human Factors in Computing Systems, (). Retrieved from https://par.nsf.gov/biblio/10300970. https://doi.org/10.1145/3411764.3445086
F. Maestre, Juan, Dillahunt, Tawanna, Andrew Theisz, Alec, Furness, Megan, Kameswaran, Vaishnav, Veinot, Tiffany, and C. Shih, Patrick.
"Examining Mobility Among People Living with HIV in Rural Areas". Proceedings of the 2021 CHI Conference on Human Factors in Computing Systems (). Country unknown/Code not available. https://doi.org/10.1145/3411764.3445086.https://par.nsf.gov/biblio/10300970.
@article{osti_10300970,
place = {Country unknown/Code not available},
title = {Examining Mobility Among People Living with HIV in Rural Areas},
url = {https://par.nsf.gov/biblio/10300970},
DOI = {10.1145/3411764.3445086},
abstractNote = {The rise of ridesharing platforms has transformed traditional transportation, making it more accessible for getting to work and accessing grocery stores and healthcare providers, which are essential to physical and mental well-being. However, such technologies are not available everywhere. Additionally, there is a scarcity of HCI work that investigates how vulnerable populations such as rural-dwelling people with HIV face and overcome transportation barriers. To extend past research, we conducted 31 surveys and 18 interviews with people living with HIV (22 surveys, 14 interviews) and their case coordinators (9 surveys, 4 interviews) in rural areas. Contrary to past research, we found that the use of alternative vehicles, extensive support networks, and nonprofit health organizations facilitated transportation. However, distance, the lack of trust and infrastructure, stigma, and other cultural underpinnings made popular forms of urban transportation unappealing. We contextualize our findings with prior research and contribute implications for future research and design.},
journal = {Proceedings of the 2021 CHI Conference on Human Factors in Computing Systems},
author = {F. Maestre, Juan and Dillahunt, Tawanna and Andrew Theisz, Alec and Furness, Megan and Kameswaran, Vaishnav and Veinot, Tiffany and C. Shih, Patrick},
editor = {null}
}
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