skip to main content


Title: Examining Mobility Among People Living with HIV in Rural Areas
The rise of ridesharing platforms has transformed traditional transportation, making it more accessible for getting to work and accessing grocery stores and healthcare providers, which are essential to physical and mental well-being. However, such technologies are not available everywhere. Additionally, there is a scarcity of HCI work that investigates how vulnerable populations such as rural-dwelling people with HIV face and overcome transportation barriers. To extend past research, we conducted 31 surveys and 18 interviews with people living with HIV (22 surveys, 14 interviews) and their case coordinators (9 surveys, 4 interviews) in rural areas. Contrary to past research, we found that the use of alternative vehicles, extensive support networks, and nonprofit health organizations facilitated transportation. However, distance, the lack of trust and infrastructure, stigma, and other cultural underpinnings made popular forms of urban transportation unappealing. We contextualize our findings with prior research and contribute implications for future research and design.  more » « less
Award ID(s):
1909700
NSF-PAR ID:
10300970
Author(s) / Creator(s):
; ; ; ; ; ;
Date Published:
Journal Name:
Proceedings of the 2021 CHI Conference on Human Factors in Computing Systems
Page Range / eLocation ID:
1 to 17
Format(s):
Medium: X
Sponsoring Org:
National Science Foundation
More Like this
  1. null (Ed.)
    Transportation has evolved throughout the past several years through developments in HCI and sociotechnical systems. However, there has been a lack of studies examining transportation in rural areas for vulnerable populations. Our study focuses on the transportation facilitators and barriers faced by people living with HIV in rural areas. We were informed through 31 surveys and 18 interviews with people living with HIV in rural areas and their case coordinators. We highlight the importance of utilizing a patchwork of transportation methods and having social networks to support transportation needs. Emerging, popular forms of urban transportation do not translate well due to differences in trust, infrastructure, rural culture, and stigma. 
    more » « less
  2. null (Ed.)
    People living with HIV experience a high level of stigma in our society. Public HIV-related stigma often leads to anxiety and depression and hinders access to social support and proper medical care. Technologies for HIV, however, have been mainly designed for treatment management and medication adherence rather than for helping people cope with public HIV-related stigma specifically. Drawing on empirical data obtained from semi-structured interviews and design activities with eight social workers and 29 people living with HIV, we unpack the ways in which needs for privacy and trust, intimacy, and social support create tensions around key coping strategies. Reflecting on these tensions, we present design implications and opportunities to empower people living with HIV to cope with public HIV-related stigma at the individual level. 
    more » « less
  3. Rosenbaum, Janet E. (Ed.)
    Accomplishing the goals outlined in “Ending the HIV (Human Immunodeficiency Virus) Epidemic: A Plan for America Initiative” will require properly estimating and increasing access to HIV testing, treatment, and prevention services. In this research, a computational spatial method for estimating access was applied to measure distance to services from all points of a city or state while considering the size of the population in need for services as well as both driving and public transportation. Specifically, this study employed the enhanced two-step floating catchment area (E2SFCA) method to measure spatial accessibility to HIV testing, treatment (i.e., Ryan White HIV/AIDS program), and prevention (i.e., Pre-Exposure Prophylaxis [PrEP]) services. The method considered the spatial location of MSM (Men Who have Sex with Men), PLWH (People Living with HIV), and the general adult population 15–64 depending on what HIV services the U.S. Centers for Disease Control (CDC) recommends for each group. The study delineated service- and population-specific accessibility maps, demonstrating the method’s utility by analyzing data corresponding to the city of Chicago and the state of Illinois. Findings indicated health disparities in the south and the northwest of Chicago and particular areas in Illinois, as well as unique health disparities for public transportation compared to driving. The methodology details and computer code are shared for use in research and public policy. 
    more » « less
  4. Energy costs are large and increasing in rural Alaska communities, so communities are turning to renewable energy. While, many of these communities have a mixed subsistence-cash economy, the relationship between renewable energy and subsistence has not been studied. Tanana, Alaska has a biomass program and we conducted interviews with 61 households in 2017 to understand how residents perceive the program and its association with subsistence activities. We analyzed Alaska Department of Fish & Game subsistence surveys from 89 communities to estimate differences in subsistence harvest between households that harvest wood and those that do not. Interviews indicated that people who harvest wood for the biomass program were six times more likely to engage in subsistence. Subsistence harvests were nearly double (184 kg/per capita) in households that harvested wood for personal use versus those that did not (101 kg/per capita). Equipment used for both activities was similar, and 57% respondents combined wood harvesting with other activities (e.g. subsistence, travel, etc.). Higher household incomes and employment were positively associated with subsistence participation (p < 0.001) while only household incomes was positively associated with wood harvest through the biomass program (p < 0.001). Overall, the program was perceived as having a positive effect (69%) for the community because it has created jobs (36%), saved people money (23%), promoted sharing (16%), and reduced fuel use by the community (15%). Our research shows that biomass programs have the potential to complement subsistence activities and enhance the sustainability of communities in rural Alaska that are faced with high energy costs. 
    more » « less
  5. The United States Department of Agriculture (USDA) has utilized the term food desert to highlight regions within low-income communities located far from fresh and healthy sources of food such as supermarkets and farmers markets. Most research on food deserts has revolved around urban areas, which bring about other considerations such as sidewalks, pedestrian access, rideshares, and public transportation, typically not viable options in rural regions. Rural food insecurity is also a problem in North Carolina. Utilizing data provided by the United States Department of Agriculture’s Food Access Atlas, this paper explored if and to what extent rural food insecurity exists, with findings showing 1) a higher percentage of people living in rural areas live in food insecurity compared to non-rural areas 2) counties in the eastern part of the state are more prone to food insecurity and 3) racial, ethnic minorities, as well as the young (age under 17), are more subjected to food insecurity compared to the majority and older cohorts. This research highlights the need for a rigorous and comprehensive understanding of rural food security that transcends the economic, cultural, and sociological reasons of differential food access with long-term health outcomes that have multi-generational consequences. 
    more » « less