Challenging behaviors significantly impact learning and socialization of autistic children and can stress and burden their caregivers. Documentation of challenging behaviors is fundamental for identifying what environmental factors influence them, such as how others respond to a child's such behaviors. Caregiver-tracked data on their child's challenging behaviors can help clinical experts make informed recommendations about how to manage such behaviors. To support caregivers in recording their children's challenging behaviors, we developed GeniAuti, a mobile-based data-collection tool built upon a clinical data collection form to document challenging behaviors and other clinically relevant contextual information such as place, duration, intensity, and what triggers such behaviors. Through an open-ended deployment with 19 parent-child pairs and three expert collaborators, caregivers found GeniAuti valuable for (1) becoming more attentive and reflective to behavioral contexts, including their own response strategies, (2) discovering positive aspects of their children's behaviors, and (3) promoting collaboration with clinical experts around the caregiver-tracked data to develop tailored intervention strategies for their children. However, participant experiences surface challenges of logging behaviors in social circumstances, conflicting views between caregivers and clinical experts around the structured recording process, and emotional struggles resulting from recording and reflecting on intensely negative experiences. Considering the complex nature of caregiver-based health tracking and caregiver--clinician collaboration, we suggest design opportunities for facilitating negotiations between caregivers and clinicians and accounting for caregivers' emotional needs.
more »
« less
Caregiver–child proximity as a dimension of early experience
Abstract Human infancy and early childhood is both a time of heightened brain plasticity and responsivity to the environment as well as a developmental period of dependency on caregivers for survival, nurturance, and stimulation. Across primate species and human evolutionary history, close contact between infants and caregivers is species-expected. As children develop, caregiver–child proximity patterns change as children become more autonomous. In addition to developmental changes, there is variation in caregiver–child proximity across cultures and families, with potential implications for child functioning. We propose that caregiver–child proximity is an important dimension for understanding early environments, given that interactions between children and their caregivers are a primary source of experience-dependent learning. We review approaches for operationalizing this construct (e.g., touch, physical distance) and highlight studies that illustrate how caregiver–child proximity can be measured. Drawing on the concepts proposed in dimensional models of adversity, we consider how caregiver–child proximity may contribute to our understanding of children’s early experiences. Finally, we discuss future directions in caregiver–child proximity research with the goal of understanding the link between early experiences and child adaptive and maladaptive functioning.
more »
« less
- Award ID(s):
- 2042285
- NSF-PAR ID:
- 10339963
- Date Published:
- Journal Name:
- Development and Psychopathology
- Volume:
- 34
- Issue:
- 2
- ISSN:
- 0954-5794
- Page Range / eLocation ID:
- 647 to 665
- Format(s):
- Medium: X
- Sponsoring Org:
- National Science Foundation
More Like this
-
-
more » « less
Abstract Caregivers who are higher in dispositional empathy tend to have children with better developmental outcomes; however, few studies have considered the role of child‐directed (i.e., “parental”) empathy, which may be relevant for the caregiver–child relationship. We hypothesized that mothers’ parental empathy during their child's infancy will be a stronger predictor of their child's social‐emotional functioning as a toddler than will mothers’ dispositional empathy. We further explored whether parental and dispositional empathy have shared or distinct patterns of neural activation during a social‐cognitive movie‐watching task. In 118 mother–infant dyads, greater parental empathy assessed when infants were 6 months old was associated with more social‐emotional competencies and fewer problems in the children 1 year later, even after adjusting for dispositional empathy. In contrast, dispositional empathy was not associated with child functioning when controlling for parental empathy. In a subset of 20 mothers, insula activation was positively associated with specific facets of both dispositional and parental empathy, whereas right temporoparietal junction activation was associated only with parental empathy. Thus, dispositional and parental empathy appear to be dissociable by both brain and behavioral metrics. Parental empathy may be a viable target for interventions, especially for toddlers at risk for developing social‐emotional difficulties.
-
more » « less
Abstract Background Practitioner and family experiences of pediatric re/habilitation can be inequitable. The Young Children’s Participation and Environment Measure (YC-PEM) is an evidence-based and promising electronic patient-reported outcome measure that was designed with and for caregivers for research and practice. This study examined historically minoritized caregivers’ responses to revised YC-PEM content modifications and their perspectives on core intelligent virtual agent functionality needed to improve its reach for equitable service design.
Methods Caregivers were recruited during a routine early intervention (EI) service visit and met five inclusion criteria: (1) were 18 + years old; (2) identified as the parent or legal guardian of a child 0–3 years old enrolled in EI services for 3 + months; (3) read, wrote, and spoke English; (4) had Internet and telephone access; and (5) identified as a parent or legal guardian of a Black, non-Hispanic child or as publicly insured. Three rounds of semi-structured cognitive interviews (55–90 min each) used videoconferencing to gather caregiver feedback on their responses to select content modifications while completing YC-PEM, and their ideas for core intelligent virtual agent functionality. Interviews were transcribed verbatim, cross-checked for accuracy, and deductively and inductively content analyzed by multiple staff in three rounds.
Results Eight Black, non-Hispanic caregivers from a single urban EI catchment and with diverse income levels (
Mdn = $15,001–20,000) were enrolled, with children (M = 21.2 months,SD = 7.73) enrolled in EI. Caregivers proposed three ways to improve comprehension (clarify item wording, remove or simplify terms, add item examples). Environmental item edits prompted caregivers to share how they relate and respond to experiences with interpersonal and institutional discrimination impacting participation. Caregivers characterized three core functions of a virtual agent to strengthen YC-PEM navigation (read question aloud, visual and verbal prompts, more examples and/or definitions).Conclusions Results indicate four ways that YC-PEM content will be modified to strengthen how providers screen for unmet participation needs and determinants to design pediatric re/habilitation services that are responsive to family priorities. Results also motivate the need for user-centered design of an intelligent virtual agent to strengthen user navigation, prior to undertaking a community-based pragmatic trial of its implementation for equitable practice.
-
We began this project with three goals: (1) engage families in engineering activities, (2) increase the awareness of kids and caregivers as to what engineering is, and (3) increase children’ interest in engineering. We focused on caregivers and home environments because of the important role that at-home experiences with STEM play in triggering interest for many individuals who enter STEM professions. We created and distributed four different kits to families interested in engaging in STEM activities at home. Each kit included a challenge around engineering-related content (e.g., circuits, construction) and contained activity instructions (child) and a facilitation guide (caregivers). However, few instructions were given to caregivers about the expectations of their role while engaging with their children. This paper reports on the findings from family engagement in the Watercolor Bot kit. We sought to explore the roles enacted and behaviors utilized by caregivers as they supported their children during the activity. Our findings add to the conversation about how to define and conceptualize caregiver roles and how the home context/setting influences the types of supports caregivers provide. In contrast to emerging work on caregiver support, we argue that it may be more fruitful to think about the types of support (physical, verbal, content, and managerial) offered rather than defining specific roles (e.g., collaborator, project manager, etc.). We provide implications for designing kits and activities to include specific support for caregivers beyond simply providing project-specific instructions that address caregivers’ needs.more » « less
-
more » « less
Abstract Links between the development of early literacy and math skills are well documented. This systematic review focuses on how literacy is incorporated into informal math intervention studies for children in preschool to third grade, which has implications for researchers and those training caregivers to support their children at home. We reviewed 51 experimental or quasi‐experimental studies published from 1981 to 2021 that investigated the effectiveness of math interventions in informal learning environments with a caregiver interventionist. Findings revealed that 100% of studies included literacy in some way. We also investigated what types of literacy activities were integrated, how literacy was a part of data sources collected, and in what ways literacy was mentioned explicitly by authors in research reports. The most common literacy activity was speaking and listening, and the most frequently included literacy data source was standardized literacy achievement measures. Finally, researchers in the included studies did not detail literacy throughout their research reports. While early math interventions often integrate literacy, the research base including math interventions would benefit from more explicit rationales for their use of literacy, and caregivers should be provided information to help understand how literacy should be a part of the way they work with their child on math at home.
- Free Publicly Accessible Full Text
-
Accepted Manuscript1.0
- Journal Article:
- https://doi.org/10.1017/S0954579421001644
