skip to main content
US FlagAn official website of the United States government
dot gov icon
Official websites use .gov
A .gov website belongs to an official government organization in the United States.
https lock icon
Secure .gov websites use HTTPS
A lock ( lock ) or https:// means you've safely connected to the .gov website. Share sensitive information only on official, secure websites.


Title: No Humans Here: Ethical Speculation on Public Data, Unintended Consequences, and the Limits of Institutional Review
Many research communities routinely conduct activities that fall outside the bounds of traditional human subjects research, yet still frequently rely on the determinations of institutional review boards (IRBs) or similar regulatory bodies to scope ethical decision-making. Presented as a U.S. university-based fictional memo describing a post-hoc IRB review of a research study about social media and public health, this design fiction draws inspiration from current debates and uncertainties in the HCI and social computing communities around issues such as the use of public data, privacy, open science, and unintended consequences, in order to highlight the limitations of regulatory bodies as arbiters of ethics and the importance of forward-thinking ethical considerations from researchers and research communities.  more » « less
Award ID(s):
1704369 1704303
PAR ID:
10346610
Author(s) / Creator(s):
; ;
Date Published:
Journal Name:
Proceedings of the ACM on Human-Computer Interaction
Volume:
6
Issue:
GROUP
ISSN:
2573-0142
Page Range / eLocation ID:
1 to 13
Format(s):
Medium: X
Sponsoring Org:
National Science Foundation
More Like this
  1. Societal Impact Statement It is increasingly common for plant scientists and urban planning and design professionals to collaborate on interdisciplinary teams that integrate scientific experiments into public and social urban spaces. However, neither the procedural ethics that govern scientific experimentation, nor the professional ethics of urban design and planning practice, fully account for the possible impacts of urban ecological experiments on local residents and communities. Scientists that participate in design and planning teams act as decision‐makers, and must expand their domain of ethical consideration accordingly. Conversely, practitioners who engage in ecological experiments take on the moral responsibilities inherent in generation of knowledge. To avoid potential harm to human and non‐human inhabitants of cities while maintaining scientific and professional integrity in research and practice, an integrated ethical framework is needed for urban ecological planning and design. SummaryWhile there are many ethical and procedural guidelines for scientists who wish to inform decision‐making and public policy, urban ecologists are increasingly embedded in planning and design teams to integrate scientific measurements and experiments into urban landscapes. These scientists are not just informing decision‐making – they are themselves acting as decision‐makers. As such, researchers take on additional moral obligations beyond scientific procedural ethics when designing and conducting ecological design and planning experiments. We describe the growing field of urban ecological design and planning and present a framework for expanding the ethical considerations of socioecological researchers and urban practitioners who collaborate on interdisciplinary teams. Drawing on existing ethical frameworks from a range of disciplines, we outline possible ways in which ecologists, social scientists, and practitioners should expand the traditional ethical considerations of their work to ensure that urban residents, communities, and non‐human entities are not harmed as researchers and practitioners carry out their individual obligations to clients, municipalities, and scientific practice. We present an integrated framework to aid in the development of ethical codes for research, practice, and education in integrated urban ecology, socioenvironmental sciences, and design and planning. 
    more » « less
  2. Over the past two decades, the study of ancient genomes from Ancestral humans, or human paleogenomic research, has expanded rapidly in both scale and scope. Ethical discourse has subsequently emerged to address issues of social responsibility and scientific robusticity in conducting research. Here, we highlight and contextualize the primary sources of professional ethical guidance aimed at paleogenomic researchers. We describe the tension among existing guidelines, while addressing core issues such as consent, destructive research methods, and data access and management. Currently, there is a dissonance between guidelines that focus on scientific outcomes and those that hold scientists accountable to stakeholder communities, such as descendants. Thus, we provide additional tools to navigate the complexities of ancient DNA research while centering engagement with stakeholder communities in the scientific process. Expected final online publication date for the Annual Review of Genomics and Human Genetics, Volume 23 is October 2022. Please see http://www.annualreviews.org/page/journal/pubdates for revised estimates. 
    more » « less
  3. Though Community Asset Mapping (CAM) has been widely used in community-development and applied to public health interventions, little has been done to synthesize the current state of this approach. This paper reports the findings from a scoping review of research where CAM was applied to public health practice and research initiatives. We identified and reviewed 28 articles featuring studies that used asset mapping for public health purposes. Overall, we found that the purpose and methods related to asset mapping varied widely across studies. Given the potential benefits of asset mapping and its relevance to social work principles, researchers and public health professionals should approach asset mapping with the same level of attention, rigor, and ethics as other research methodologies or intervention design. There is an obligation to engage in asset mapping in ways that promote our ethical principles of service, dignity, integrity, and competence. 
    more » « less
  4. This material is primarily based upon work supported by the National Science Foundation Graduate Research Fellowship (grant no. DGE-1321845). Addressing complex social-ecological issues requires all relevant sources of knowledge and data, especially those held by communities who remain close to the land. Centuries of oppression, extractive research practices, and misrepresentation have hindered balanced knowledge exchange with Indigenous communities and inhibited innovation and problem-solving capacity in all scientific fields. A recent shift in the research landscape reflects a growing interest in engaging across diverse communities and ways of knowing. Scientific discussions increasingly highlight the inherent value of Indigenous environmental ethics frameworks and processes as the original roadmaps for sustainable development planning, including their potential in addressing the climate crisis and related social and environmental concerns. Momentum in this shift is also propelled by an increasing body of research evidencing the role of Indigenous land stewardship for maintaining ecological health and biodiversity. However, a key challenge straining this movement lies rooted in colonial residue and ongoing actions that suppress and co-opt Indigenous knowledge systems. Scientists working with incomplete datasets privilege a handful of narratives, conceptual understandings, languages, and historical contexts, while failing to engage thousands of collective bodies of intergenerational, place-based knowledge systems. The current dominant colonial paradigm in scientific research risks continued harmful impacts to Indigenous communities that sustain diverse knowledge systems. Here, we outline how ethical standards in researcher practice can be raised in order to reconcile colonial legacies and ongoing settler colonial practices. We synthesize across Indigenous and community-based research protocols and frameworks, transferring knowledge across disciplines, and ground truthing methods and processes in our own practice, to present a relational science working model for supporting Indigenous rights and reconciliation in research. We maintain that core Indigenous values of integrity, respect, humility, and reciprocity should shape researcher responsibilities and methods applied in order to raise ethical standards and long-term relational accountability regarding Indigenous lands, rights, communities, and our shared futures. 
    more » « less
  5. null (Ed.)
    User engagement with data privacy and security through consent banners has become a ubiquitous part of interacting with internet services. While previous work has addressed consent banners from either interaction design, legal, and ethics-focused perspectives, little research addresses the connections among multiple disciplinary approaches, including tensions and opportunities that transcend disciplinary boundaries. In this paper, we draw together perspectives and commentary from HCI, design, privacy and data protection, and legal research communities, using the language and strategies of “dark patterns” to perform an interaction criticism reading of three different types of consent banners. Our analysis builds upon designer, interface, user, and social context lenses to raise tensions and synergies that arise together in complex, contingent, and conflicting ways in the act of designing consent banners. We conclude with opportunities for transdisciplinary dialogue across legal, ethical, computer science, and interactive systems scholarship to translate matters of ethical concern into public policy. 
    more » « less