An official website of the United States government
Community-based participatory research (CBPR) is a framework to improve social equity by engaging communities as equal partners in research design, conduct, and knowledge creation. While CBPR has seen increasing application in Arctic regions, its use in Greenland has been limited by logistical, linguistic, and historical challenges, including community fatigue from extractive research practices. This manuscript details a CBPR-informed approach used to conduct an exploratory study on fertility, reproductive health, and climate adaptation in the Kalaallit community of Paamiut. The study aimed to understand the socio-environmental factors influencing fertility decisions amid economic and environmental changes. We report on nine strategies used to conduct equitable health and socio-ecological research in Greenland guided by the principles of CBPR. Using CBPR principles improved trust, participant recruitment, and the creation of community-valued research products in Paamiut. While time and funding limitations constrained full implementation of CBPR best practices, this study highlights the potential of CBPR to improve equity in Greenlandic research. Using CBPR principles to guide community-engaged research in Greenland provides a concrete and actionable way for students or early-career researchers to promote equitable relationships despite resource limitations. The methods described can be applied across other research disciplines to continue building trust and sustainability in international research partnerships in Greenland.
more »
« less
Health Disparities Research with American Indian Communities: The Importance of Trust and Transparency
American Indian and Alaska Native (AI/AN) communities experience notable health disparities associated with substance use, including disproportionate rates of accidents/injuries, diabetes, liver disease, suicide, and substance use disorders. Effective treatments for substance use are needed to improve health equity for AI/ AN communities. However, an unfortunate history of unethical and stigmatizing research has engendered distrust and reluctance to participate in research among many Native communities. In recent years, researchers have made progress toward engaging in ethical health disparities research by using a community-based participatory research (CBPR) framework to work in close partnership with community members throughout the research process. In this methodological process paper, we discuss the collaborative development of a quantitative survey aimed at understanding risk and protective factors for substance use among a sample of tribal members residing on a rural AI reservation with numerous systems-level barriers to recovery and limited access to treatment. By using a CBPR approach and prioritizing trust and transparency with community partners and participants, we were able to successfully recruit our target sample and collect quality data from nearly 200 tribal members who self-identified as having a substance use problem. Strategies for enhancing buy-in and recruiting a community sample are discussed.
more »
« less
- Award ID(s):
- 2451864
- PAR ID:
- 10593429
- Publisher / Repository:
- Wiley Publishing
- Date Published:
- Journal Name:
- American Journal of Community Psychology
- Volume:
- 66
- Issue:
- 3-4
- ISSN:
- 0091-0562
- Page Range / eLocation ID:
- 302 to 313
- Format(s):
- Medium: X
- Sponsoring Org:
- National Science Foundation
More Like this
-
-
Abstract BackgroundAs an illustrative example of COVID-19 pandemic community-based participatory research (CBPR), we describe a community-academic partnership to prioritize future research most important to people experiencing high occupational exposure to COVID-19 – food service workers. Food service workers face key challenges surrounding (1) health and safety precautions, (2) stress and mental health, and (3) the long-term pandemic impact. MethodUsing CBPR methodologies, academic scientists partnered with community stakeholders to develop the research aims, methods, and measures, and interpret and disseminate results. We conducted a survey, three focus groups, and a rapid qualitative assessment to understand the three areas of concern and prioritize future research. ResultsThe survey showed that food service employers mainly supported basic droplet protections (soap, hand sanitizer, gloves), rather than comprehensive airborne protections (high-quality masks, air quality monitoring, air cleaning). Food service workers faced challenging decisions surrounding isolation, quarantine, testing, masking, vaccines, and in-home transmission, described anxiety, depression, and substance use as top mental health concerns, and described long-term physical and financial concerns. Focus groups provided qualitative examples of concerns experienced by food service workers and narrowed topic prioritization. The rapid qualitative assessment identified key needs and opportunities, with help reducing in-home COVID-19 transmission identified as a top priority. COVID-19 mitigation scientists offered recommendations for reducing in-home transmission. ConclusionsThe COVID-19 pandemic has forced food service workers to experience complex decisions about health and safety, stress and mental health concerns, and longer-term concerns. Challenging health decisions included attempting to avoid an airborne infectious illness when employers were mainly only concerned with droplet precautions and trying to decide protocols for testing and isolation without clear guidance, free tests, or paid sick leave. Key mental health concerns were anxiety, depression, and substance use. Longer-term challenges included Long COVID, lack of mental healthcare access, and financial instability. Food service workers suggest the need for more research aimed at reducing in-home COVID-19 transmission and supporting long-term mental health, physical health, and financial concerns. This research provides an illustrative example of how to cultivate community-based partnerships to respond to immediate and critical issues affecting populations most burdened by public health crises.more » « less
-
Abstract: Tribal Nations in the United States are afflicted by a number of disparities including health, socioeconomics, education, and contaminant exposure to name a few. To understand drinking water quality disparities, we analyzed Safe Drinking Water Act violations in Indian Country found in the Environmental Protection Agency’s (EPA’s) Enforcement and Compliance History Online (ECHO) and compared them to violations in non-tribal areas of the same state for the time period 2014 – 2017. The violations assessed were total point accumulations per year per 1,000 customers, health-based maximum contaminant limit (MCL), reporting and monitoring, and public notice for each state reporting tribal data. Violation point disparities were evident, as tribal facilities acquired nearly six times the points of the national average. In some states, health-based tribal water quality was better than in non-tribal communities, however Arizona, Iowa, Idaho, Montana, Utah, and Wyoming had MCL violations affecting a greater percentage of tribal populations than non-tribal. Nation-wide, monitoring and reporting violations affected tribal communities at nearly twice the rate of non-tribal customers. Public notice reporting was high and comparable for both tribal and non-tribal facilities. Finally, a comparison of small drinking water facilities, under which ~97% of the surveyed tribal drinking water falls, confirmed state-wide disparities. Solutions for the apparent disparities in Indian Country and on non-tribal lands may be as simple as rectifying monitoring and reporting violations, though this correction will not shift the overall water quality difference. Addressing MCL and treatment violations is the next step to reduce the disparity.more » « less
-
Affordable access to safe drinking water is essential to community health, yet there is limited understanding of water insecurity among Native Americans. Therefore, the focus of this paper is to describe Apsáalooke (Crow Indian) tribal members’ experiences with water insecurity. For Apsáalooke people, local rivers and springs are still vitally important for traditional cultural activities. We interviewed 30 Native American adults living on the Crow Reservation in Southeastern Montana. Participants answered six open-ended interview questions about their water access, costs of obtaining water and changes in their domestic and traditional water uses. Participants emphasized how the use of water has changed over time and described the complex challenges associated with addressing water insecurity in their community, including the importance of considering the spiritual and cultural impacts of water insecurity on health. Water insecurity is a growing global problem and more attention and efforts are needed to find appropriate and affordable solutions.more » « less
-
null (Ed.)Affordable access to safe drinking water is essential to community health, yet there is limited understanding of water insecurity among Native Americans. Therefore, the focus of this paper is to describe Apsáalooke (Crow Indian) tribal members’ experiences with water insecurity. For Apsáalooke people, local rivers and springs are still vitally important for traditional cultural activities. We interviewed 30 Native American adults living on the Crow Reservation in Southeastern Montana. Participants answered six open-ended interview questions about their water access, costs of obtaining water and changes in their domestic and traditional water uses. Participants emphasized how the use of water has changed over time and described the complex challenges associated with addressing water insecurity in their community, including the importance of considering the spiritual and cultural impacts of water insecurity on health. Water insecurity is a growing global problem and more attention and efforts are needed to find appropriate and affordable solutions.more » « less
- Free Publicly Accessible Full Text
-
Accepted Manuscript1.0
- Journal Article:
- https://doi.org/10.1002/ajcp.12445
