This content will become publicly available on October 28, 2026

Title: Power, Prescription, and Postpositivism: Considerations for collecting and representing neurodiversity demographic information in physics education research
Demographic data collection is essential in education research, as demographic data allows researchers to better describe the participant population they study and to contextualize findings. However, current research practices for neurodiversity demographics often rely on prescriptive methods (e.g., requiring participants to report official diagnoses) rather than allowing participants to self-identify. This approach can: a) not allow participants to express their intersecting identities in ways that are authentic; and b) limit trustworthiness and reliability of the data and interpretation. In addition, inconsistent dissemination and representation of demographic data across studies hinder the accessibility and usability of this work. Through a literature review of neurodivergent student experiences with learning and performing STEM, we identified widespread discrepancies in how demographic information is collected and reported. This paper explores how neurodivergent identities can be more accurately and inclusively represented in education research. We present findings of a thematic analysis on the ways neurodivergent demographic data collection is done in the literature using data from a systematic literature review on neurodivergent science, technology, engineering, and mathematics (STEM) learning and performance. We call on the PER community to contribute to the development of a framework that centers participant autonomy while supporting clarity, consistency, and future research use.  more » « less
Award ID(s):
2411711
PAR ID:
10685665
Author(s) / Creator(s):
; ; ;
Publisher / Repository:
comPADRE Digital Library
Date Published:
Page Range / eLocation ID:
300 to 307
Format(s):
Medium: X
Location:
Washington, DC
Sponsoring Org:
National Science Foundation
More Like this
  1. Informal science education researchers have become increasingly interested in how out-of-school spaces that offer STEM (science, technology, engineering, and math) programs inform learners’ STEM achievement, interests, and affective outcomes. Studies have found that these spaces can offer critical learning and developmental opportunities for underrepresented racially minoritized (URM) students (Black, Latinx, low socioeconomic status) in STEM subjects. Shifting away from the leaky STEM pipeline analogy, researchers have posited contemporary understandings to explain why the minoritization of URM girls persists. Informal learning environments such as STEM summer camps are being studied to assess how URM girls experience and interact with STEM in novel ways. These environments can inform the research field about how URM girls’ perceptions of their STEM identities, abilities, efficacy, and belonging in STEM develop as they engage in those spaces. This mixed-method study used a multiple-case-study approach to examine how aspects of URM middle school girls’ STEM identities positively changed after participating in a one-week, sleep-away, single-gender STEM summer camp held at a university in the Southwestern U.S. Drawing on intersectionality and STEM identity, we used ecological systems theory to design our research study, examining how URM middle school girls narrate their STEM identities in this informal learning environment. Using quantitative analyses and deductive coding methods, we explored how elements of girls’ STEM identities were shaped during and after their participation in the STEM summer camp. Findings from our study highlight (1) quantitative changes in girl participants’ STEM identities, sense of belonging in STEM, and perceived STEM ability belief, (2) qualitative results supporting our quantitative findings, and (3) how the intersectionality of participants’ race and gender played a role in their STEM identities. This study points to the potential of STEM informal learning camps as a way of developing and fostering URM girls’ STEM identities. 
    more » « less
  2. Demographic data pertain to people’s identities and behaviors. Analyses of demographic data are used to describe patterns and predict behaviors, to inform interface design, and even institutional decision-making processes. Demographic data thus need to be complete and correct to ensure they can be analyzed in ways that reflect reality. This study consists of interviews with 40 people in STEM and addresses how causes of relational (dis)trust in demographic data collection contribute to pervasive problems of missing and incorrect responses and disobliging responses (e.g., non-disclosure, false responses, attrition, and hesitancy to use services). The findings then guide a preliminary set of recommendations for cultivating trustworthiness based on recent developments in trust theory and designing for responsive and trustworthy systems. Specifically, we explore how demographic questionnaire design (e.g., item construction and instructions) can communicate necessary reassurances and transparency for users. The ongoing research provides interview-based recommendations for improving the quality and completeness of demographic data collection. This research adds to other recommendations on improving demographic questionnaires. 
    more » « less
  3. There has been considerable investment in pre-college educational interventions for all areas of STEM (including computer science). The goal of many of these initiatives is to engage and interest students early in their educational career. In this study, a systematic literature review was undertaken to determine the demographic and program data collected and reported for the field of computing education and for other STEM disciplines for activities that were not designed as part of the formal in-class curriculum (e.g., outreach activities). A comparison-contrast analysis of the resulting 342 articles found similarities and key differences in the reporting of this data as well as overarching characteristics of missing or incomplete reporting across disciplines. Authors from both fields reported equally well in the four categories studied: information about evaluation, participant gender, participant race and/or ethnicity, and activity demographics. However, the computing education articles were more likely to have clearly stated research questions and comparative analysis based on demographic characteristics. They were less likely to include the number of participants in the study, participant age/grade level, socioeconomic status, disability information, location of intervention, and instructor demographics. Through this analysis, it was determined that reporting can be improved across all disciplines to improve the quantity of data needed to replicate studies and to provide complete data sets that provide for the comparison of collected data. 
    more » « less
  4. Riedinger, K; Ponti, G (Ed.)
    This chapter describes the design and pilot of NeuroVivid: A Maker Camp for All Brains, a weeklong maker program created to engage and support neurodivergent middle schoolers in inclusive, meaningful STEM learning experiences. Grounded in principles of project-based learning (PBL) and Universal Design for Learning (UDL), the camp engaged participants in hands-on exploration of brain–computer interface (BCI) technology, allowing them to use their own brain signals with circuits and block coding to power small lights and motors. Through a participatory co-design process, neurodivergent teens and young adults helped create accessible, engaging activities and supports that addressed diverse sensory, executive function, and social-emotional needs. The chapter details how our intentional design of physical and social environments—combined with asset-based facilitation, choice-driven activities, and executive function scaffolds—supported autonomy, confidence, and a sense of belonging among campers. Qualitative data collected through observations, conversations, and daily feedback highlighted strong engagement, emerging STEM identities, and moments of connection and empowerment. Findings from this pilot inform the next phase of design research and contribute to a growing body of work on creating neuroinclusive STEM learning spaces that broaden participation. 
    more » « less
  5. BackgroundDespite efforts to increase the participation of marginalized students, neurodivergent students remain underrepresented in graduate STEM programs. Prior research shows that these students often experience challenges related to key aspects of writing. The objective of this qualitative study is to deepen understanding of the writing experiences, strengths, and challenges of neurodivergent students pursuing graduate degrees in STEM fields. In this analysis, we consider the factors that influence the writing-specific challenges faced by neurodivergent students in graduate STEM programs. This work also explores how neurodivergent students leverage strengths and strategies for success in graduate-level writing tasks. ResultsThis qualitative study draws on Social Cognitive Theory (SCT) to consider the ways cognitive, behavioral, and environmental factors impact writing experiences. We used thematic analysis of the transcripts from 13 focus groups and 1 interview to examine the writing experiences of 31 students who identify as neurodivergent in graduate STEM programs. The findings suggest that many writing challenges faced by neurodivergent graduate students are behaviors and beliefs that emerge in response to environmental factors such as the culture of STEM fields, prior experiences with writing assignments, anxiety driven by intensive feedback cycles, and perceived and experienced stigma. Study participants employed a range of collaborative and situational strategies to support and enhance their writing productivity. ConclusionThese findings may provide insight for current and future neurodivergent graduate students as they adjust to the intense writing demands of graduate degree programs and for graduate program administrators and faculty advisors as they consider new ways to support the academic success of neurodivergent graduate students. 
    more » « less