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Award ID contains: 1915504

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  1. Past research has demonstrated that accounts of trusted others can provide additional context into real world behavior relevant to clinical decision-making and patient engagement. Our research investigates the Social Sensing System, a concept which leverages trusted other feedback for veterans in therapy for PTSD. In our two phase study, we work with 10 clinicians to develop text-message queries and realistic scenarios to present to patients and trusted others. We then present the results in the form of a storyboard to 10 veterans with PTSD and 10 trusted others and gather feedback via semi-structured interview and survey. We find that while trusted other feedback may provide a unique and useful perspective, key design features and considerations of underlying relationships must be considered. We present our findings and utilize the mechanisms and conditions framework to assess the power dynamics of systems such as social sensing in the mental health realm. 
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  2. Veterans are a unique marginalized group facing multiple vulnerabilities. Current assessments of veteran needs and support largely come from first-person accounts guided by researchers' prompts. Social media platforms not only enable veterans to connect with each other, but also to self-disclose experiences and seek support. This paper addresses the gap in our understanding of veteran needs and their own support dynamics by examining self-initiated and ecologically-valid self-expressions. In particular, we adopt the Veteran Critical Theory (VCT) to conduct a computational study on the Reddit community of veterans. Using topic modeling, we find veteran-friendly gestures with good intentions might not be appreciated in the subreddit. By employing transfer learning methodologies, we find this community has more informational and emotional support behaviors than general online communities and a higher prevalence of informational support than emotional support. Lastly, an examination of support dynamics reveals some contrasts to previous scholarship in military culture and social media. We discover that positive language and author platform tenure have negative relations with posts receiving replies and replies getting votes, and that replies reflecting personal disclosures tend to get more votes. Through the lens of VCT, we discuss how online communities can help uncover veterans' needs and provide more effective social support. 
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  3. Post-traumatic stress disorder (PTSD) disproportionately affects United States veterans, yet they may be reluctant to seek or engage in care. We interview 21 participants, including veterans with PTSD, clinicians who treat veterans and friends and family that support veterans through mental health ordeals. We investigate the military identity these veterans share. We explore how this may add to their reluctance in care-seeking behaviors. We also explore the roles of human and non-human intermediaries in ecologies of care and the potential for enhancing patient empowerment in current clinical treatment contexts. We discuss how military culture can be utilized in clinical care, how multiple perspectives can be leveraged to create a more holistic view of the patient, and finally, how veterans can be empowered during treatment. We conclude with recommendations for the design of sociotechnical systems that prioritize the above in support of the mental well-being of veterans with PTSD. 
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  4. Post-traumatic stress disorder (PTSD) is a serious mental health condition. Prolonged Exposure (PE) therapy has been shown to have the greatest therapeutic efficacy in treating PTSD. However, clinicians face significant challenges in delivering PE therapy successfully. We conducted a two-part study with 17 clinicians where we (1) gathered requirements for a PE therapy dashboard and (2) had clinicians assess the relevance and usability of our dashboard prototypes. The first part of our study showed that clinicians wanted (1)improved workflow for their PE sessions (2)improved methods of monitoring their patients’ self-report data and (3)a way to assess their patients’ progress outside of sessions. The second part showed that our dashboard prototypes were highly usable. Our study provides preliminary steps in designing user-centered tools that assist clinicians in the delivery of PE therapy by improving data access and workflow efficiency. 
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