Research examining whether and how adolescent patients should gain access to their electronic health records is gaining momentum. We conducted a survey to explore diversity in adolescent privacy policies and identify common approaches in health information technology management for adolescent patients. Through descriptive analyses of survey data, we found a wide range of institutional policies regarding adolescent patient privacy, and large variations in health IT executives’ baseline knowledge of access policies. A majority of respondents agreed that formal guidelines pertaining to adolescent health record privacy would be helpful. Respondents suggested that these guidelines can be developed through the synthesis of multiple perspectives, including those of pediatricians, adolescent specialists, privacy experts, parents, patient advocates, and other professional entities.
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Variability in adolescent portal privacy features: how the unique privacy needs of the adolescent patient create a complex decision-making process
- Award ID(s):
- 1652302
- NSF-PAR ID:
- 10084796
- Date Published:
- Journal Name:
- Journal of the American Medical Informatics Association
- Volume:
- 25
- Issue:
- 8
- ISSN:
- 1067-5027
- Page Range / eLocation ID:
- 1008 to 1017
- Format(s):
- Medium: X
- Sponsoring Org:
- National Science Foundation
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Parents and adolescents often have discrepant views of parenting which pose challenges for researchers regarding how to deal with information from multiple informants. Although recent studies indicate that parent–adolescent discrepancies in reports of parenting can be useful in predicting adolescent outcomes, their findings are mixed regarding whether discrepancies relate to more positive or more negative adolescent outcomes. This study examined the longitudinal implications of parent–adolescent discrepancies in reports of parenting (warmth, monitoring, and reasoning) on adolescent behavioral, psychological, academic, and physical health outcomes among Mexican immigrant families in the United States. Participants were 604 adolescents (54% female, Mage.wave1 = 12.41 years) and their parents. Taking a person-centered approach, this study identified distinct patterns of parent–adolescent discrepancies in parenting and their different associations with later adolescent outcomes. Adolescents’ more negative perceptions of parenting relative to parents were associated with more negative adolescent outcomes, whereas adolescents’ more positive perceptions relative to parents related to more positive adolescent outcomes. There were also variations in discrepancy patterns and their associations with adolescent outcomes between mother–adolescent vs. father-adolescent dyads. Findings of the current study highlight individual variations of discrepancies among parent–adolescent dyads and the importance of considering both the magnitude and direction of discrepancies regarding their associations with adolescent well-being.more » « less
- Free Publicly Accessible Full Text
-
Accepted Manuscript1.0
- Journal Article:
- https://doi.org/10.1093/jamia/ocy042
