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BackgroundAlzheimer's disease affects 55 million people worldwide. As the disease progresses, these individuals require a devoted caregiver, often a family member, who provides evolving complex care. Caregivers can experience a variety of ongoing stressors, resulting in reductions in caregiver emotional well-being (and other quality-of-life indicators). Information and communication technologies provide an excellent opportunity to train caregivers remotely and help them to manage these stressors and related distress. ObjectiveThis protocol describes the theoretical rationale, study design, and methods of a new, technologically enhanced psychoeducational skill-building intervention for caregivers of people with dementia that includes a virtual reality component. MethodsThrough Alzheimer’s Eyes is a 4-week, single-arm, pre-post test pilot study consisting of 4 sessions of 90 minutes each that are delivered by videoconferencing. These sessions include a weekly virtual reality experience characterizing the journey of an older Latina with Alzheimer's disease from her perspective to help caregivers see through the eyes of a person with dementia. The 4 sessions cover the skill-training topics of communication, managing challenging behaviors and unhelpful thoughts, the importance of self-care, and mindfulness—all of which are key components designed to reduce stress and distress in family caregivers. Individual interviews conducted before and after the intervention gather participant insights into the intervention, evaluate its feasibility and acceptability, and assess its impact on key outcomes. ResultsData collection for the study started in January 2022, and the results are expected to be submitted for publication in the second half of 2023. Twenty caregivers from the United States have completed the workshop to date. Preliminary data gathered from these participants support the intervention’s feasibility and acceptability. ConclusionsThrough Alzheimer’s Eyes leverages existing technology combined with psychoeducational skill building to help caregivers manage their stress, regardless of their location. International Registered Report Identifier (IRRID)DERR1-10.2196/42655
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CARETAKVR: A Virtual Reality Environment to Train Alzheimer's Caregivers
The number of patients diagnosed with Alzheimer's disease is significantly increasing, given the boom in the aging population (i.e., 65 years and older). There exist approximately 5.5 million people in the United States that have been diagnosed with Alzheimer's, and as a result friends and family often need to provide care and support (estimated at 15 million people to the cost of $1.1 trillion). Common symptoms of Alzheimer's disease include memory loss, drastic behavioral change, depression, and loss in cognitive and/or spatial abilities. To support the growing need for caregivers, this project developed a prototype virtual reality (VR) environment for enabling caregivers to experience typical scenarios, as well as common strategies for managing each scenario, that they may experience when providing care and support, thereby providing. For instance, a patient may turn on a gas stove and then leave, forgetting that the stove is on. The caregiver then would be required to turn the stove off, to minimize any potential dangers. The prototype environment, CARETAKVR, was developed as an undergraduate research project for learning the process of research as well as the Unity programming environment and VR. The prototype provides a gamified training tool, masking scenarios as objectives and success with a score, to enable the potential caregiver to feel rewarded for correctly supporting the patient. The virtual patient is controlled via artificial intelligence and follows an initial set of guidelines to behave as a patient with early-stage Alzheimer's may behave. The caregiver is provided with a set of tasks to perform, in VR space, to achieve their goals for each scenario. Common tasks include Check Refrigerator, Check Stove, and Comfort Patient. This project has been demonstrated to colleagues in the health care domain and has seeded future collaborations to iterate the capabilities of this tool. All project artifacts have been open-sourced and are available online.
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- Award ID(s):
- 1657061
- PAR ID:
- 10088804
- Date Published:
- Journal Name:
- Proceedings of the 2019 American Society for Engineering Education North Central Section Conference
- Format(s):
- Medium: X
- Sponsoring Org:
- National Science Foundation
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