The mass collection and reuse of social data requires a reimagining of privacy and consent, with particular attention to the (in)equitable distribution of benefits and burdens between researchers and subjects. Instrumenting frontline clinical services to collect and steward data might mitigate the exploitation inherent to data collection---with attention to how subjects can meaningfully participate in stewardship. We explore participatory data stewardship in the context of clinical computer security for survivors of intimate partner violence (IPV). Via semi-structured interviews with IPV support workers, we explore how data are produced within the IPV care ecosystem at the Clinic to End Tech Abuse (CETA). We then conduct design provocations with clients of IPV services and their support workers, exploring possibilities for participatory data mechanisms like open records and dynamic consent. We find participation in data stewardship may benefit clients through improved agency, self-reflection, and control of self-narrative, and that incurred burdens may be alleviated by enlisting trusted stewards. We close with future work for CSCW interrogating how knowledge of digital-safety harms can and should be produced from clinical encounters, towards more equitable ways of knowing.
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A Digital Safety Dilemma: Analysis of Computer-Mediated Computer Security Interventions for Intimate Partner Violence During COVID-19
The shutdown measures necessary to stop the spread of COVID-19 have amplified the role of technology in intimate partner violence (IPV). Survivors may be forced to endure lockdowns with their abusers, intensifying the dangers of technology-enabled abuse (e.g. stalking, harassment, monitoring, surveillance). They may also be forced to rely on potentially compromised devices to reach support networks: a dangerous dilemma for digital safety. This qualitative study examines how technologists with computer security expertise provided remote assistance to IPV survivors during the pandemic. Findings from 24 consults with survivors and five focus groups with technologist consultants show how remote delivery of technology support services raised three fundamental challenges: (1) ensuring safety for survivors and consultants; (2) assessing device security over a remote connection; and (3) navigating new burdens for consultants, including emotional labor. We highlight implications for HCI researchers creating systems that enable access to remote expert services for vulnerable people.
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- Award ID(s):
- 1916096
- PAR ID:
- 10295031
- Date Published:
- Journal Name:
- Proceedings of the 2021 CHI Conference on Human Factors in Computing Systems
- Page Range / eLocation ID:
- 1 to 17
- Format(s):
- Medium: X
- Sponsoring Org:
- National Science Foundation
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