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1. A Study of Users' Privacy Preferences for Data Sharing on Symptoms-Tracking/Health App

   https://doi.org/10.1145/3559613.3563202  

   Asif, Hafiz; Vaidya, Jaideep (November 2022, Proceedings of the 21st Workshop on Privacy in the Electronic Society)

   Symptoms-tracking applications allow crowdsensing of health and location related data from individuals to track the spread and outbreaks of infectious diseases. During the COVID-19 pandemic, for the first time in history, these apps were widely adopted across the world to combat the pandemic. However, due to the sensitive nature of the data collected by these apps, serious privacy concerns were raised and apps were critiqued for their insufficient privacy safeguards. The Covid Nearby project was launched to develop a privacy-focused symptoms-tracking app and to understand the privacy preferences of users in health emergencies. In this work, we draw on the insights from the Covid Nearby users' data, and present an analysis of the significantly varying trends in users' privacy preferences with respect to demographics, attitude towards information sharing, and health concerns, e.g. after being possibly exposed to COVID-19. These results and insights can inform health informatics researchers and policy designers in developing more socially acceptable health apps in the future. 

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2. Contact Tracing Apps: Lessons Learned on Privacy, Autonomy, and the Need for Detailed and Thoughtful Implementation

   https://doi.org/10.2196/27449  

   Hogan, Katie; Macedo, Briana; Macha, Venkata; Barman, Arko; Jiang, Xiaoqian (January 2021, JMIR Medical Informatics)

   The global and national response to the COVID-19 pandemic has been inadequate due to a collective lack of preparation and a shortage of available tools for responding to a large-scale pandemic. By applying lessons learned to create better preventative methods and speedier interventions, the harm of a future pandemic may be dramatically reduced. One potential measure is the widespread use of contact tracing apps. While such apps were designed to combat the COVID-19 pandemic, the time scale in which these apps were deployed proved a significant barrier to efficacy. Many companies and governments sprinted to deploy contact tracing apps that were not properly vetted for performance, privacy, or security issues. The hasty development of incomplete contact tracing apps undermined public trust and negatively influenced perceptions of app efficacy. As a result, many of these apps had poor voluntary public uptake, which greatly decreased the apps’ efficacy. Now, with lessons learned from this pandemic, groups can better design and test apps in preparation for the future. In this viewpoint, we outline common strategies employed for contact tracing apps, detail the successes and shortcomings of several prominent apps, and describe lessons learned that may be used to shape effective contact tracing apps for the present and future. Future app designers can keep these lessons in mind to create a version that is suitable for their local culture, especially with regard to local attitudes toward privacy-utility tradeoffs during public health crises. 

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3. Contested Care: COVID-19 Surveillance and Health Data in the Workplace

   https://doi.org/10.24908/ss.v21i2.15819  

   Metcalf, Kathryne; Irani, Lilly; Uribe del Águila, Verónica (July 2023, Surveillance & Society)

   Within the ongoing disruption of the COVID-19 pandemic, technologically mediated health surveillance programs have vastly intensified and expanded to new spaces. Popular understandings of medical and health data protections came into question as a variety of institutions introduced new tools for symptom tracking, contact tracing, and the management of related data. These systems have raised complex questions about who should have access to health information, under what circumstances, and how people and institutions negotiate relationships between privacy, public safety, and care during times of crisis. In this paper, we take up the case of a large public university working to keep campus productive during COVID-19 through practices of placemaking, symptom screeners, and vaccine mandate compliance databases. Drawing on a multi-methods study including thirty-eight interviews, organizational documents, and discursive analysis, we show where and for whom administrative care infrastructures either misrecognized or torqued (Bowker and Star 1999) the care relationships that made life possible for people in the university community. We argue that an analysis of care—including the social relations that enable it and those that attempt to hegemonically define it—opens important questions for how people relate to data they produce about their bodies as well as to the institutions that manage them. Furthermore, we argue that privacy frameworks that rely on individual rights, essential categories of “sensitive information,” or the normative legitimacy of institutional practices are not equipped to reveal how people negotiate privacy and care in times of crisis. 

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4. Does State Tightness-Looseness Predict Behavior and Attitudes Early in the COVID-19 Pandemic in the USA?

   https://doi.org/10.1177/00220221221077710  

   Gilliam, Ashley; Schwartz, Danielle B.; Godoy, Ricardo; Boduroglu, Aysecan; Gutchess, Angela (June 2022, Journal of Cross-Cultural Psychology)

   We investigated how tightness-looseness, reflecting strictness of social norms, of state of residence in the USA predicts behaviors and attitudes related to COVID-19. Because individual-level tightness may better capture current attitudes during the pandemic, whereas state-level archival measures reflect historical factors, we assessed the extent to which tightness-looseness at both levels predicted adherence to public health guidelines and biases toward outgroups related to COVID-19. In Spring 2020, 544 mTurk participants, primarily from the 13 tightest and 13 loosest states, completed survey questions about health behaviors in response to COVID-19, endorsement of future policy changes, feeling of responsibility for lives, and attitudes toward groups marginalized during the pandemic (i.e., Asians, older adults). State-level results indicated some associations with attitudes toward Asians and older adults, but effects were not robust. Results based on individuals’ ratings of the tightness of their state indicated that higher levels of perceived tightness were associated with higher levels of protective self-reported public health behaviors (e.g., mask wearing, handwashing) during COVID-19, more endorsement of future policy changes to contain the pandemic, higher reported feelings of responsibility for one’s life, and stronger negative attitudes toward Asians. The relations between tightness and health outcomes persisted after controlling for political attitudes and demographics. Thus, individual, more than state, tightness-looseness accounted for some degree of public health behaviors (unique contribution of individual tightness: R 2  = .034) and attitudes toward marginalized groups ( R 2  = .020) early during the COVID-19 pandemic. The implications of these findings for interventions to support behavior change or combat anti-Asian bias are discussed. 

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5. Americans’ willingness to adopt a COVID-19 tracking app

   https://doi.org/10.5210/fm.v25i11.11095  

   Hargittai, Eszter; Redmiles, Elissa M.; Vitak, Jessica; Zimmer, Michael (October 2020, First Monday)

   null (Ed.)

   The COVID-19 global pandemic led governments, health agencies, and technology companies to work on solutions to minimize the spread of the disease. One such solution concerns contact-tracing apps whose utility is tied to widespread adoption. Using survey data collected a few weeks into lockdown measures in the United States, we explore Americans’ willingness to install a COVID-19 tracking app. Specifically, we evaluate how the distributor of such an app (e.g., government, health-protection agency, technology company) affects people’s willingness to adopt the tool. While we find that 67 percent of respondents are willing to install an app from at least one of the eight providers included, the factors that predict one’s willingness to adopt differ. Using Nissenbaum’s theory of privacy as contextual integrity, we explore differences in responses across distributors and discuss why some distributors may be viewed as less appropriate than others in the context of providing health-related apps during a global pandemic. We conclude the paper by providing policy recommendations for wide-scale data collection that minimizes the likelihood that such tools violate the norms of appropriate information flows. 

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