Older adults are rapidly increasing their use of online services such as banking, social media, and email - services that come with subtle and serious security and privacy risks. Older adults with mild cognitive impairment (MCI) are particularly vulnerable to these risks because MCI can reduce their ability to recognize scams such as email phishing, follow recommended password guidelines, and consider the implications of sharing personal information. Older adults with MCI often cope with their impairments with the help of caregivers, including partners, children, and professional health personnel, when using and managing online services. Yet, this too carries security and privacy risks: sharing personal information with caregivers can create issues of agency, autonomy, and even risk embarrassment and information leakage; caregivers also do not always act in their charges' best interest. Through a series of interviews conducted in the US, we identify a spectrum of safeguarding strategies used and consider them through the lens of 'upside and downside risk' where there are tradeoffs between reduced privacy and maintaining older adults' autonomy and access to online services.
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Addressing Online Health Privacy Risks for Older Adults: A Perspective on Ethical Considerations and Recommendations
The rise in online health information seeking among older adults promises significant benefits but also presents potentially serious privacy risks. In light of these risks, we argue that ongoing research and advocacy aimed at promoting online health information seeking among older adults must be coupled with efforts to identify and address threats to their online privacy. We first detail how internet users reveal sensitive health information to third parties through seemingly innocuous web browsing. We then describe ethical concerns raised by the inadvertent disclosure of health information, which include the potential for dignitary harms, subjective injuries, online health scams, and discrimination. After reviewing ways in which existing privacy laws fail to meet the needs of older adults, we provide recommendations for individual and collective action to protect the online privacy of older adults.
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- Award ID(s):
- 2125561
- NSF-PAR ID:
- 10331104
- Date Published:
- Journal Name:
- Gerontology and Geriatric Medicine
- Volume:
- 8
- ISSN:
- 2333-7214
- Page Range / eLocation ID:
- 233372142210957
- Format(s):
- Medium: X
- Sponsoring Org:
- National Science Foundation
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- Free Publicly Accessible Full Text
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Accepted Manuscript1.0
- Journal Article:
- https://doi.org/10.1177/23337214221095705
