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1. Preventing Cardiovascular Disease Among Urban African Americans With a Mobile Health App (the MOYO App): Protocol for a Usability Study

   https://doi.org/10.2196/16699  

   Taylor Jr, Herman A ; Francis, Sherilyn ; Evans, Chad Ray ; Harvey, Marques ; Newton, Brittney A ; Jones, Camara P ; Akintobi, Tabia Henry ; Clifford, Gari ( January 2020 , JMIR Research Protocols)

   null (Ed.)

   Background Cardiovascular disease (CVD) disparities are a particularly devastating manifestation of health inequity. Despite advancements in prevention and treatment, CVD is still the leading cause of death in the United States. Additionally, research indicates that African American (AA) and other ethnic-minority populations are affected by CVD at earlier ages than white Americans. Given that AAs are the fastest-growing population of smartphone owners and users, mobile health (mHealth) technologies offer the unparalleled potential to prevent or improve self-management of chronic disease among this population. Objective To address the unmet need for culturally tailored primordial prevention CVD–focused mHealth interventions, the MOYO app was cocreated with the involvement of young people from this priority community. The overall project aims to develop and evaluate the effectiveness of a novel smartphone app designed to reduce CVD risk factors among urban-AAs, 18-29 years of age. Methods The theoretical underpinning will combine the principles of community-based participatory research and the agile software development framework. The primary outcome goals of the study will be to determine the usability, acceptability, and functionality of the MOYO app, and to build a cloud-based data collection infrastructure suitable for digital epidemiology in a disparity population. Changes in health-related parameters over a 24-week period as determined by both passive (eg, physical activity levels, sleep duration, social networking) and active (eg, use of mood measures, surveys, uploading pictures of meals and blood pressure readings) measures will be the secondary outcome. Participants will be recruited from a majority AA “large city” school district, 2 historically black colleges or universities, and 1 urban undergraduate college. Following baseline screening for inclusion (administered in person), participants will receive the beta version of the MOYO app. Participants will be monitored during a 24-week pilot period. Analyses of varying data including social network dynamics, standard metrics of activity, percentage of time away from a given radius of home, circadian rhythm metrics, and proxies for sleep will be performed. Together with external variables (eg, weather, pollution, and socioeconomic indicators such as food access), these metrics will be used to train machine-learning frameworks to regress them on the self-reported quality of life indicators. Results This 5-year study (2015-2020) is currently in the implementation phase. We believe that MOYO can build upon findings of classical epidemiology and longitudinal studies like the Jackson Heart Study by adding greater granularity to our knowledge of the exposures and behaviors that affect health and disease, and creating a channel for outreach capable of launching interventions, clinical trials, and enhancements of health literacy. Conclusions The results of this pilot will provide valuable information about community cocreation of mHealth programs, efficacious design features, and essential infrastructure for digital epidemiology among young AA adults. International Registered Report Identifier (IRRID) DERR1-10.2196/16699 

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2. Resilience, pain, and the brain: Relationships differ by sociodemographics

   https://doi.org/10.1002/jnr.24790  

   Tanner, Jared J. ; Johnson, Alisa J. ; Terry, Ellen L. ; Cardoso, Josue ; Garvan, Cynthia ; Staud, Roland ; Deutsch, Georg ; Deshpande, Hrishikesh ; Lai, Song ; Addison, Adriana ; et al ( February 2021 , Journal of Neuroscience Research)

   Chronic musculoskeletal (MSK) pain is disabling to individuals and burdensome to society. A relationship between telomere length and resilience was reported in individuals with consideration for chronic pain intensity. While chronic pain associates with brain changes, little is known regarding the neurobiological interface of resilience. In a group of individuals with chronic MSK pain, we examined the relationships between a previously investigated resilience index, clinical pain and functioning measures, and pain‐related brain structures, with consideration for sex and ethnicity/race. A cross‐sectional analysis of 166 non‐Hispanic Black and non‐Hispanic White adults, 45–85 years of age with pain ≥ 1 body site (s) over the past 3 months was completed. Measures of clinical pain and functioning, biobehavioral and psychosocial resilience, and structural MRI were completed. Our findings indicate higher levels of resilience associate with lower levels of clinical pain and functional limitations. Significant associations between resilience, ethnicity/race, and/or sex, and pain‐related brain gray matter structure were demonstrated in the right amygdaloid complex, bilateral thalamus, and postcentral gyrus. Our findings provide compelling evidence that in order to decipher the neurobiological code of chronic pain and related protective factors, it will be important to improve how chronic pain is phenotyped; to include an equal representation of females in studies including analyses stratifying by sex, and to consider other sociodemographic factors.

    

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3. "I'm looking at you, you're a perfectly good person …”: Describing non-apparent disability in engineering

   https://doi.org/https://strategy.asee.org/36059  

   Zongrone, C. ; McCall, C. ; Paretti, M. C. ; Shew, A. ; Simmons, D. R. ; McNair, L. D. ( January 2021 , Collaborative Network for Engineerign and Computing Diversity)

   null (Ed.)

   In recent years, studies in engineering education have begun to intentionally integrate disability into discussions of diversity, inclusion, and equity. To broaden and advocate for the participation of this group in engineering, researchers have identified a variety of factors that have kept people with disabilities at the margins of the field. Such factors include the underrepresentation of disabled individuals within research and industry; systemic and personal barriers, and sociocultural expectations within and beyond engineering education-related contexts. These findings provide a foundational understanding of the external and environmental influences that can shape how students with disabilities experience higher education, develop a sense of belonging, and ultimately form professional identities as engineers. Prior work examining the intersections of disability identity and professional identity is limited, with little to no studies examining the ways in which students conceptualize, define, and interpret disability as a category of identity during their undergraduate engineering experience. This lack of research poses problems for recruitment, retention, and inclusion, particularly as existing studies have shown that the ways in which students perceive and define themselves in relation to their college major is crucial for the development of a professional engineering identity. Further, due to variation in defining ‘disability’ across national agencies (e.g., the National Institutes of Health, and the Department of Justice) and disability communities (with different models of disability), the term “disability” is broad and often misunderstood, frequently referring to a group of individuals with a wide range of conditions and experiences. Therefore, the purpose of this study is to gain deeper insights into the ways students define disability and disability identity within their own contexts as they develop professional identities. Specifically, we ask the following research question: How do students describe and conceptualize non-apparent disabilities? To answer this research question, we draw from emergent findings from an on-going grounded theory exploration of professional identity formation of undergraduate civil engineering students with disabilities. In this paper, we focus our discussion on the grounded theory analyses of 4 semi-structured interviews with participants who have disclosed a non-apparent disability. Study participants consist of students currently enrolled in undergraduate civil engineering programs, students who were initially enrolled in undergraduate civil engineering programs and transferred to another major, and students who have recently graduated from a civil engineering program within the past year. Sensitizing concepts emerged as findings from the initial grounded theory analysis to guide and initiate our inquiry: 1) the medical model of disability, 2) the social model of disability, and 3) personal experience. First, medical models of disability position physical, cognitive, and developmental difference as a “sickness” or “condition” that must be “treated”. From this perspective, disability is perceived as an impairment that must be accommodated so that individuals can obtain a dominantly-accepted sense of normality. An example of medical models within the education context include accommodations procedures in which students must obtain an official diagnosis in order to access tools necessary for academic success. Second, social models of disability position disability as a dynamic and fluid identity that consists of a variety of physical, cognitive, or developmental differences. Dissenting from assumptions of normality and the focus on individual bodily conditions (hallmarks of the medical model), the social model focuses on the political and social structures that inherently create or construct disability. An example of a social model within the education context includes the universal design of materials and tools that are accessible to all students within a given course. In these instances, students are not required to request accommodations and may, consequently, bypass medical diagnoses. Lastly, participants referred to their own life experiences as a way to define, describe, and consider disability. Fernando considers his stutter to be a disability because he is often interrupted, spoken over, or silenced when engaging with others. In turn, he is perceived as unintelligent and unfit to be a civil engineer by his peers. In contrast, David, who identifies as autistic, does not consider himself to be disabled. These experiences highlight the complex intersections of medical and social models of disability and their contextual influences as participants navigate their lives. While these sensitizing concepts are not meant to scope the research, they provide a useful lens for initiating research and provides markers on which a deeper, emergent analysis is expanded. Findings from this work will be used to further explore the professional identity formation of undergraduate civil engineering students with disabilities. These findings will provide engineering education researchers and practitioners with insights regarding the ways individuals with disabilities interpret their in- and out-of-classroom experiences and navigate their disability identities. For higher education, broadly, this work aims to reinforce the complex and diverse nature of disability experience and identity, particularly as it relates to accommodations and accessibility within the classroom, and expand the inclusiveness of our programs and institutions. 

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4. Interpersonal Interactions that Foster Inclusion: Building Supports for Diversity in Engineering Teams

   Rodríguez-Simmonds, Héctor E. ; Jackson, Benjamin P. ; Pearson, Nelson S. ; Langus, Tara C. ; Major, Justin C. ; Kirn, Adam ; Godwin, Allison ( January 2018 , ASEE annual conference & exposition)

   Teaming is a core part of engineering education, especially in the first and last years of engineering when project work is a prevalent focus. The literature on the effects of working in diverse teams is mixed. Negative findings include decreased affect, increased frustration, and sustained conflict in teams. Positive findings include increased productivity, production of high quality products, and divergent-thinking and idea generation. Given these mixed findings, it becomes important to not only understand the practical outputs of working in diverse teams, but also how the experience of working in diverse teams influences whether students see themselves as engineers and whether or not they feel they belong in engineering. Our project, Building Supports for Diversity through Engineering Teams, investigates how students’ attitudes towards diversity influence how students experience work in diverse teams through addressing two main research questions: 1) What changes occur in students’ diversity sensitivity, multicultural effectiveness, and engineering practices as a result of working in diverse teams? 2) How do students’ perceptions of diversity, affect, and engineering practices change because of working on diverse teams? Using a multi-method approach, we deployed survey instruments to determine changes in student’s attitudes about teaming, diversity sensitivity, and openness attitudes. We also observed students working in teams and interviewed these students about their perceptions of diversity and experiences in their teams. Preliminary results of the quantitative phase show that variance in students’ attitudes about diversity significantly increase over the semester, further reflecting the mixed results that have been seen previously in the literature. Additionally, Social Network Analysis was used to characterize the social structure practices of a multi-section, large-enrollment first-year engineering course. This reveals the underlying social structure of the environment, its inclusiveness, and how diverse students work with others on engineering. Initial results indicate that students are included in social networks regardless of gender and race. Preliminary results of the qualitative phase, using Interpretive Phenomenological Analysis, have yielded relationships between student’s definitions, valuation, and enactment of diversity in engineering spaces. Individual student’s incoming attitudes of diversity and previous experiences interact with practical needs in first-year engineering classrooms to create different microclimates within each team. These microclimates depict tensions between what instructors emphasize about diversity, stereotypes of engineering as focused on technical instead of social skills, and pragmatic forces of “getting the job done.” This knowledge can help explain some of the complexity behind the conflicting literature on diversity in teams. Ultimately, this research can help us understand how to build inclusive and diverse environments that guide students to learn how to understand their own complex relationship, understanding, and enactment of diversity in engineering. By understanding how students make sense of diversity in engineering spaces, educators and researchers can figure out how to introduce these concepts in relevant ways so that students can inclusively meet the grand challenges in engineering. This curriculum integration, in turn, can improve team interactions and the climate of engineering for underrepresented groups. 

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5. The Complexity of Nonbinary Gender Inclusion in Engineering Culture

   Haverkamp, A. ( June 2018 , ASEE annual conference & exposition)

   Gender in engineering is a long-standing source of inquiry, research, outreach, and discussion as inequity in demographics and negative experiences persist in the field. Women consist of just approximately 20% of our engineering undergraduate programs nationally, and roughly 14% of our national professional workforce. Absent from these numbers and research into gender minority experiences are students who lay further on the margins of discussion, awareness, inclusion, and acknowledgement of existence - students who identify as nonbinary or other genders aside from man or woman. This paper presents background literature on gender, gender minority experiences in higher education, nonbinary gender identity, and aims to present points of discussion to facilitate further engagement with a more nuanced understanding of gender in engineering. Gender as a social system is defined by multiplicity and fluidity and does not fit within two unitary and discrete categories. The majority of current gender in engineering scholarship utilizes a conceptualization of gender which does not acknowledge or incorporate more than two gender options, and is rooted in increasingly rejected notions of biological essentialism. Nonbinary and gender nonconforming students, some of which also identify within the transgender population, exist in liminal spaces throughout society and higher education, and continuation of this scholarship tacitly denies their existence by framing gender as intrinsically linked to two biological categories. Engineering professionals, faculty, and students who identify as neither men nor women must be included and our conversation be expanded for academically rigorous investigation into gender dynamics and create inclusive engineering spaces. Conversations around gender neutral bathrooms are just the beginnings of widespread cultural change to support gender expansive engineers. The discipline must re-think our approaches towards gender equity in engineering and the theoretical conceptualization of gender to not only frame its inequity through the sharp underrepresentation of women, but its gender dynamics as experienced by nonbinary and gender nonconforming students. We must continue to make space for marginalized gender identities and gendered experiences. Through reviewing existing literature and integrating my own intimate experiences I seek to discuss preliminary efforts towards nonbinary inclusion in our teaching, professionalization, and language. This paper represents a point of entry for discussing nonbinary inclusion as part of the discipline's continued commitment to cultural change surrounding gender. 

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