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Title: Ethical Imperatives for Working With Diverse Populations in Digital Research
Digital research methodologies are driving a revolution in health technology but do not yet fully engage diverse and historically underrepresented populations. In this paper, we explore the ethical imperative for such engagement alongside accompanying challenges related to recruitment, appreciation of risk, and confidentiality, among others. We critically analyze existing research ethics frameworks and find that their reliance on individualistic and autonomy-focused models of research ethics does not offer adequate protection in the context of the diversity imperative. To meet the requirements of justice and inclusivity in digital research, methods will benefit from a reorientation toward more participatory practices.  more » « less
Award ID(s):
2124894
PAR ID:
10483302
Author(s) / Creator(s):
; ;
Publisher / Repository:
JOURNAL OF MEDICAL INTERNET RESEARCH
Date Published:
Journal Name:
Journal of Medical Internet Research
Volume:
25
ISSN:
1438-8871
Page Range / eLocation ID:
e47884
Format(s):
Medium: X
Sponsoring Org:
National Science Foundation
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