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When a child is admitted to the hospital with a critical illness, their family must adapt and manage care and stress. CSCW researchers have shown the potential for collaborative technologies to support and augment care collaboration between patients and caregivers. However, as a field CSCW lacks a holistic, theory-driven understanding of how collaborative technologies might best augment and support the family caregiving circle as a socio-technical system. In this paper, we report findings from interviews with 14 parents of children with cancer admitted for extended hospitalizations. We use the resilience-based Family Adaptive Systems framework from family therapy as a lens to characterize their challenges and practices across four key subsystems: Emotion, Control, Meaning, and Maintenance. Then, we introduce a fifth system-the Information system-and draw on our empirical findings to suggest theory-driven opportunities for designing future collaborative technology to augment collaborative caregiving and enhance family resilience.
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Alone and Together: Resilience in a Fluid Socio-Technical-Natural System
Disruption to routines is an increasingly common part of everyday life. With the roots of some disruptions in the interconnectedness of the world and environmental and socio-political instability, there is good reason to believe that conditions that cause widespread disruption will persist. Individuals, communities, and systems are thus challenged to engage in resilience practices to deal with both acute and chronic disruption. Our interest is in chronic, everyday resilience, and the role of both technology and non-technical adaptation practices engaged by individuals and communities, with a specific focus on practices centered in nature. Foregrounding nature's role allows close examination of environmental adversity and nature as part of adaptivity. We add to the CSCW and HCI literature on resilience by examining long-distance hikers, for whom both the sources of adversity and the mitigating resilience processes cut across the social, the technical, and the environmental. In interviews with 12 long-distance hikers we find resilience practices that draw upon technology, writ large, and nature in novel assemblages, and leverage fluid configurations of the individual and the community. We place our findings in the context of a definition for resilience that emphasizes a systems view at multiple scales of social organization. We make three primary contributions: (1) we contribute an empirical account of resilience in a contextual setting that complements prior CSCW resilience studies, (2) we add nuance to existing models for resilience to reflect the role of technology as both a resilience tool and a source of adversity, and (3) we identify the need for new designs that integrate nature into systems as a way to foster collaborative resilience. This nuanced understanding of the role of technology in individual and community resilience in and with nature provides direction for technology design that may be useful for everyday disrupted life.
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- PAR ID:
- 10603264
- Publisher / Repository:
- Association for Computing Machinery (ACM)
- Date Published:
- Journal Name:
- Proceedings of the ACM on Human-Computer Interaction
- Volume:
- 7
- Issue:
- CSCW1
- ISSN:
- 2573-0142
- Format(s):
- Medium: X Size: p. 1-26
- Size(s):
- p. 1-26
- Sponsoring Org:
- National Science Foundation
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