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Scientific research increasingly involves large, multidisciplinary teams networked across multiple institutions to develop new technologies. Despite the rise of complex research networks and big team science, there has been little analysis to date of the ethical challenges facing these networks. The extensive literature on the ethical issues confronting individual researchers and small teams (the micro level) and on the larger societal challenges flowing from research and new technology (the macro level) leave a troubling gap in between, at the meso level of the research network involved in big team science. Yet the ability of complex networks to conduct research ethically – which is essential if the results are to be deemed reliable and trustworthy – depends on recognizing the ethical issues that emerge at this intermediate network level, identifying the values that should guide networks in addressing those issues, and equipping research leaders to build a culture supporting the ethical conduct of research across the laboratories and institutions that comprise the network. This paper calls out the problem, analyzing the gap and recommending next steps.
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A Conjunctural Analysis of the Origins of ‘Embedded ELSI’ in U.S. Genomic Medicine.
Calls to identify, explore, and address ethical and social issues as part of the design and implementation of scientific research are now widespread. One way of doing so is through an embedded approach, where ethical, legal, and social implications (ELSI) researchers are situated within larger scientific research studies. We trace the emergence of the ‘embedded ELSI’ approach to integration alongside the development of genomic medicine. In particular, we conduct a conjunctural analysis that draws attention to contests and struggles over the forms and meanings of good science – in this case, genomics – and the role(s) of ELSI scholars and researchers in producing good science. We demonstrate that the embedded ELSI approach emerged from these contests, which left ELSI research and interventions constrained – institutionally, topically, and methodologically. We end by calling for an opening up of embedded approaches to integration so that they might better meet calls for justice and equity in the present conjuncture.
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- Award ID(s):
- 2220631
- PAR ID:
- 10651317
- Publisher / Repository:
- Journal of Responsible Innovation.
- Date Published:
- Journal Name:
- Journal of Responsible Innovation
- ISSN:
- 2413698
- Subject(s) / Keyword(s):
- Embedded ethics, ELSI, genomics, conjuncture, integration, justice
- Format(s):
- Medium: X
- Sponsoring Org:
- National Science Foundation
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- Free Publicly Accessible Full Text
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Accepted Manuscript
- Journal Article:
- https://doi.org/https://doi.org/10.1080/23299460.2024.2413698
