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  1. ; ; ; ; ; ; ; ; ; ; et al ( , Health Services Research)
    Abstract Objective

    To understand the perspectives of home health aides (HHAs) toward their own health and health behaviors, and how their job impacts both.

     Data Sources and Study Setting

    Interviews were conducted with 28 HHAs from 16 unique home care agencies from August 2021 to January 2022. The study was conducted in partnership with the 1199SEIU Training and Employment Fund, a labor‐management fund of the largest health care union in the US.

     Study Design

    A qualitative study with English and Spanish‐speaking HHAs. Interviews were conducted using a semi‐structured topic guide, informed by Pender's Health Promotion Model and the National Institute for Occupational Safety and Health's Total Worker Health Model. To be eligible, HHAs had to be currently employed by a home care agency in New York, NY.

     Data Collection/Extraction Methods

    Interviews were recorded, professionally transcribed, and analyzed thematically.

     Principal Findings

    The 28 HHAs had a mean age of 47.6 years (SD 11.1), 39% were non‐Hispanic Black, 43% were Hispanic, and they had a mean of 14.1 years (SD 7.8) of job experience. Five themes emerged; HHAs were: (1) Healthy enough to work, but were managing their own chronic conditions while working; (2) Motivated to be healthy, in part driven by their desire to care for others; (3) Worked closely with sick patients, which influenced their perceptions of health; (4) Experienced occupational and patient‐level barriers to practicing healthy behaviors; (5) Sought support and resources to improve their health and wellbeing.

     Conclusions

    HHAs have numerous health challenges, many of which are influenced by their job. Culturally and occupationally tailored interventions may mitigate the barriers that HHAs experience to achieve optimal health.

     
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  2. ; ; ; ; ; ; ; ( , Proceedings of the 2023 ACM Designing Interactive Systems Conference)
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  3. ; ; ; ; ; ; ( , Proceedings of the 2023 CHI Conference on Human Factors in Computing Systems)
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  4. ; ; ( , Proceedings of the 2023 CHI Conference on Human Factors in Computing Systems)
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  5. ; ; ; ; ; ; ( , Proceedings of the ACM on Human-Computer Interaction)
    Home care workers (HCWs) provide essential care in patients' homes but are often underappreciated and work in stressful and isolated environments with diverse and intersecting support needs. This paper describes a computer-mediated peer support program that centers around sharing circles: spaces for personal, narrative storytelling to encourage HCWs to collaboratively reflect on their home care experiences and build rapport and shared identity with their peers. We describe the design of this program and a 12-week deployment that we conducted to evaluate the program with 42 HCWs in New York City. Our findings show that participants engaged in multiple types of peer support including emotional validation, learning how to navigate the workplace and patient care, defining and enabling good home care praxis, and building understanding around purpose and identity as HCWs. We discuss how these findings inform the design of technology and use of holistic pedagogies, such as storytelling, to enable this support in computer-mediated peer support programs. Such programs can help researchers and practitioners interested in addressing diverse needs that occur in intersectional contexts, such as that of HCWs and other marginalized populations. 
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  6. ; ; ; ; ; ; ; ( , Proceedings of the ACM on Human-Computer Interaction)
    Home health aides are paid professionals who provide long-term care to an expanding population of adults who need it. However, aides' work is often unrecognized by the broader caregiving team despite being in demand and crucial to care---an invisibility reinforced by ill-suited technological tools. In order to understand the invisible work aides perform and its relationship to technology design, we interviewed 13 aides employed by home care agencies in New York City. These aides shared examples that demonstrated the intertwined nature of both types of invisible work (i.e., emotions- and systems-based) and expanded the sociological mechanisms of invisibility (i.e., sociocultural, sociolegal, sociospatial) to include the sociotechnical. Through these findings, we investigate the opportunities, tensions, and challenges that could inform the design of tools created for these important, but often overlooked, frontline caregivers. 
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  7. ; ; ; ; ; ; ; ( , Journal of Applied Gerontology)
    This study examines the unique challenges facing rural home care workers. Semi-structured interviews were undertaken between July 2021 and February 2022 with 23 participants that have experience in rural home care delivery. The major challenge confronting rural home care workers involved distance and transportation. This challenge emerged due to long distance between clients, unreliable vehicles, inadequate reimbursement, and inclement weather. In turn, this challenge exacerbated three other types of challenges facing rural home care workers: workforce challenges that consisted of a persistent labor shortage and shorter visits that forced workers to rush through tasks, client isolation due to the social and physical seclusion of households, and the poor working conditions of home care work more broadly. Without policy interventions that respond to these particular challenges, the care gap in rural areas can be expected to grow. 
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  8. ; ; ; ; ; ; ; ; ; ; et al ( , Risk Management and Healthcare Policy)
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  9. ; ; ; ; ; ( , ACM SIGCAS/SIGCHI Conference on Computing and Sustainable Societies (COMPASS))
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  10. ; ; ; ; ( , Proceedings of the 2022 International Conference on Information and Communication Technologies and Development)
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