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In the digital healthcare era, it is utmost important to harness medical information scattered across healthcare institutions to support in-depth data analysis. However, the boundaries of cyberinfrastructure of healthcare providers place obstacles on data sharing. In this position paper, we firstly identify the challenges of medical data sharing and management. Then we introduce the background and give a brief survey on the state-of-the-art. Finally, we conclude the paper by discussing a few possible research directions to cope with the challenges in current medical information sharing.
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Ten principles for data sharing and commercialization
Abstract Digital medical records have enabled us to employ clinical data in many new and innovative ways. However, these advances have brought with them a complex set of demands for healthcare institutions regarding data sharing with topics such as data ownership, the loss of privacy, and the protection of the intellectual property. The lack of clear guidance from government entities often creates conflicting messages about data policy, leaving institutions to develop guidelines themselves. Through discussions with multiple stakeholders at various institutions, we have generated a set of guidelines with 10 key principles to guide the responsible and appropriate use and sharing of clinical data for the purposes of care and discovery. Industry, universities, and healthcare institutions can build upon these guidelines toward creating a responsible, ethical, and practical response to data sharing.
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- Award ID(s):
- 1700832
- PAR ID:
- 10348246
- Date Published:
- Journal Name:
- Journal of the American Medical Informatics Association
- Volume:
- 28
- Issue:
- 3
- ISSN:
- 1527-974X
- Page Range / eLocation ID:
- 646 to 649
- Format(s):
- Medium: X
- Sponsoring Org:
- National Science Foundation
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- Free Publicly Accessible Full Text
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Accepted Manuscript1.0
- Journal Article:
- https://doi.org/10.1093/jamia/ocaa260
