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Online community research routinely poses minimal risk to individuals, but does the same hold true for online communities? In response to high-profile breaches of online community trust and increased debate in the social computing research community on the ethics of online community research, this paper investigates community-level harms and benefits of research. Through 9 participatory-inspired workshops with four critical online communities (Wikipedia, InTheRooms, CaringBridge, and r/AskHistorians), we found researchers should engage more directly with communities' primary purpose by rationalizing their methods and contributions in the context of community goals to equalize the beneficiaries of community research. To facilitate deeper alignment of these expectations, we present the FACTORS (Functions for Action with Communities: Teaching, Overseeing, Reciprocating, and Sustaining) framework for ethical online community research. Finally, we reflect on our findings by providing implications for researchers and online communities to identify and implement functions for navigating community-level harms and benefits.more » « lessFree, publicly-accessible full text available October 18, 2026
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While online community research is prevalent in CSCW, there are limited ethical principles for conducting research that may affect online communities. At the same time, a growing body of evidence suggests that traditional ethical review focused on research with individuals fails to fully capture the complexities of online community research. To support advancing ethical online community research, we propose a one-day hybrid workshop centered around tensions and challenges in adopting best practices for ethical online community research. This workshop aims to bring together online community researchers to 1) recognize existing approaches for ethical online community research, 2) expose gaps in current practices, and 3) prioritize directions to reconcile these ethical challenges.more » « lessFree, publicly-accessible full text available October 17, 2026
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Large age differences and geographic distance between siblings can often hinder the development of close relationships, as they may have different social circles and schedules. Younger siblings may also have limited access to digital technology, which can further complicate communication and interaction between them. In this paper, we developed two technology probes, Haptic Bubble and Emoji Board. Both of these systems utilize embodied interaction, which has been shown to be an effective way to engage children in remote communication. Our work focused on three main goals through the development and preliminary study: the system design goal involved testing the feasibility of the embodied design approach, the empirical goal was to collect information on how siblings use embodied communication technology and the design goal was to inspire new kinds of technology to support large gap siblings’ needs.more » « less
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Siblings play a crucial and long-lasting role in family connections and relationships. However, with the older sibling transitioning out of their parental home, maintaining a close sibling relationship can be challenging, especially if siblings have a large age difference. We conducted a diary and interview study with nine families in China which have spaced siblings, to identify design opportunities for technology to better support their communication and connection needs. We contribute to the HCI community in three aspects. First, we contribute an empirical understanding of current communication patterns from distributed families with large age gap siblings in China. Second, we identify current facilitation roles, practices, and challenges regarding sibling relationships from different stakeholders’ perspectives. Last but not least, we present technological opportunities for supporting the large-gap sibling relationship, informing directions for future research and design for distributed families.more » « less
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Recovery from substance abuse disorders (SUDs) is a lifelong process of change. Self-tracking technologies have been proposed by the recovery community as a beneficial design space to support people adopting positive lifestyles and behaviors in their recovery. To explore the potential of this design space, we designed and deployed a technology probe consisting of a mobile app, wearable visualization, and ambient display to enable people to track and reflect on the activities they adopted in their recovery process. With this probe we conducted a four-week exploratory field study with 17 adults in early recovery to investigate 1) what activities people in recovery desire to track, 2) how people perceive self-tracking tools in relation to their recovery process, and 3) what digital resources self-tracking tools can provide to aid the recovery process. Our findings illustrate the array of activities that people track in their recovery, along with usage scenarios, preferences and design tensions that arose. We discuss implications for holistic self-tracking technologies and opportunities for future work in behavior change support for this context.more » « less
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