An official website of the United States government
Teens with complex chronic illnesses have difficulty understanding and articulating symptoms such as pain and emotional distress. Yet, symptom communication plays a central role in clinical care and illness management. To understand how design can help overcome these challenges, we created a visual library of 72 sketched illustrations, informed by the Observations of Daily Living framework along with insights from 11 clinician interviews. We utilized our library with storyboarding techniques, free-form sketching, and interviews, in co-design sessions with 13 pairs of chronically-ill teens and their parents. We found that teens depicted symptoms as being interwoven with narratives of personal and social identity. Teens and parents were enthusiastic about collaboratively-generated, interactive storyboards as a tracking and communication mechanism, and suggested three ways in which they could aid in communication and coordination with informal and formal caregivers. In this paper, we detail these findings, to guide the design of tools for symptom-tracking and incorporation of patient-generated data into pediatric care.
more »
« less
This content will become publicly available on May 2, 2026
The Balancing Act of Social Audio Facilitators: When Self-Promotion Overshadows Community Care
Voice-based social media platforms that enable attendees to have real-time, ephemeral interactions with each other—such as X-Spaces, Discord, and Clubhouse—have seen considerable growth in recent years. While prior research on these spaces has predominantly focused on moderating harms, our work seeks to understand emergent practices employed by hosts to proactively shape their discussion space— focusing on the facilitation aspect of moderation duties. Drawing on facilitation strategies, we study these practices through three comprehensive studies using mixed-methods: survey of social-audio users, co-design interviews, and analyzing training sessions for hosts. Our findings reveal insights into the issues faced by hosts and attendees, current facilitation practices, opinions on technological solutions, and factors that could be responsible for some of the identified issues such as the available training for hosts. We found that hosts themselves are often significant sources of issues due to practices such as focusing more on self-promotion than facilitating discussions. In addition, host training sessions seem to encourage behaviors that contribute to the negative perception of hosts. We draw on outcomes from co-design interviews to guide the design of future tools to support hosts in facilitating social-audio spaces. Our findings provide insights that could help create a more positive experience for both hosts and attendees.
more »
« less
- Award ID(s):
- 2009003
- PAR ID:
- 10654072
- Publisher / Repository:
- ACM
- Date Published:
- Journal Name:
- Proceedings of the ACM on Human-Computer Interaction
- Volume:
- 9
- Issue:
- 2
- ISSN:
- 2573-0142
- Page Range / eLocation ID:
- 1 to 34
- Format(s):
- Medium: X
- Sponsoring Org:
- National Science Foundation
More Like this
-
-
Children from underserved, minoritized, and immigrant families have less access to early out-of-school STEM learning opportunities. Playful Learning Landscapes increase the accessibility of early STEM learning in everyday public spaces (e.g., bus stops, grocery stores) by merging principles of guided play and STEM learning goals with local community's values. We used community-based design research to (1) identify Latine families’ funds of knowledge related to play, science, and math learning, and (2) create designs for playful environments merging families’ values and practices with guided play and STEM learning principles. Our design partners were 32 parents, primarily Spanish-speaking immigrant mothers from Mexico, and two directors of a local community organization. The design process consisted of co-design sessions, interviews, inductive thematic analysis, elaboration, playtest and feedback, and iteration. Our findings showed that familismo, heritage representation, and the meaning of community spaces influenced the ways families engaged in STEM learning and the learning environments they desired in their community. Moreover, families’ STEM practices were rooted in everyday experiences of playing cultural games, family food routines, and outdoor activities. Incorporating Latine parents in the design process and leveraging their funds of knowledge resulted in culturally situated designs aligned with playful and STEM learning principles. This study contributes to knowledge of Latine families’ values and practices that can help create home-community connections to strengthen children's learning.more » « less
-
This paper examines the importance of facilitation in youth constructionist learning environments, presenting best practices developed through an educational live-action roleplay (edu-larp) curriculum for middle school-aged youth. Drawing on four pilot deployments, we identify strategies for training facilitators in improvisation, role-play, and technical troubleshooting to ensure alignment with constructionist values. We detail how these practices were scaled and supported through the development of training materials and resources for a camp-in-a-box adaptation. Key findings highlight the need for active engagement in role-play during training, the value of adaptable resources, and the effectiveness of narrative framing in motivating STEM engagement. This work contributes to understanding how facilitation practices can enhance informal learning experiences and provides insights into scaling such practices effectively.more » « less
-
MCVT (Making Computing Visible and Tangible) Cards are a toolkit of paper-based computing cards intended for use in the codesign of inclusive computing education. Working with groups of teachers and students over multiple design sessions, we share our toolkit, design drivers and material considerations; and use cases drawn from a week-long codesign workshop where seven teachers made and adapted cards for their future classroom facilitation. Our findings suggest that teachers valued the MCVT toolkit as a resource for their own learning and perceived the cards to be useful for supporting new computational practices, specifically for learning through making and connecting to examples of everyday computing. Critically reviewed by teachers during codesign workshops, the toolkit however posed some implementation challenges and constraints for learning through making and troubleshooting circuitry. From teacher surveys, interviews, workshop video recordings, and teacher-constructed projects, we show how teachers codesigned new design prototypes and pedagogical activities while also adapting and extending paper-based computing materials so their students could take advantage of the unique technical and expressive affordances of MCVT Cards. Our design research contributes a new perspective on using interactive paper computing cards as a medium for instructional materials development to support more inclusive computing education.more » « less
-
Adolescents isolated at home during the COVID19 pandemic lockdown are more likely to feel lonely and in need of social connection. Social robots may provide a much needed social interaction without the risk of contracting an infection. In this paper, we detail our co-design process used to engage adolescents in the design of a social robot prototype intended to broadly support their mental health. Data gathered from our four week design study of nine remote sessions and interviews with 16 adolescents suggested the following design requirements for a home robot: (1) be able to enact a set of roles including a coach, companion, and confidant; (2) amplify human-to-human connection by supporting peer relationships; (3) account for data privacy and device ownership. Design materials are available in open-access, contributing to best practices for the field of Human-Robot Interaction.more » « less
